Hello

[Breezy]

Thanks everyone!! Sorry I havent been on, its school holidays here in oz so the little monsters are keeping me pretty busy *whew*...I'm on 15mg methotrexate, 75mg pred, 300mg lyrica, some anti-depressant and an antibiotic, not sure which cause I cant remember the names lol...I had a follow up Rheumy app a few days ago and hes added another disease, I also have Rheumatoid Arthritis. Good thing is the treatment is basically the same so thats a plus . It is what it is! BTW thats one of my fav sayings these days hah... I really appreciate all the warm welcomes and advice and the links for the spoon theory (Birdie) thank you...its just nice to have somewhere to come where people know what you are going through and understand how it is all affecting you. I'm sorry we all have to be here but I'm glad at the same time lol

[mishb]

Hi Bri,

Your meds soind very familiar. I also have RA and Lupus and a bundle of others.
.......and yes, the treatment is the same.

Are they sure it's RA and not just WG causing the joint pains? The joint pains are very common with WG.

As you say, it is what it is

I hope the inflammation and pain levels start to get better quickly so that you can start reducing that pred to a much nicer level.

[Birdie]

and the links for the spoon theory (Birdie) thank you

Spoon theory rocks! Wake up the friends and relatives, get em in your corner even if you don't look sick.

Hold on for the ride Breezy, it's wild at 75 mg of pred. Just make sure you don't reduce too fast or too soon, let the Wegener's make that decision. You want it under control or you'll be right back for more.

[Alysia]

Welcome bre. I think you are in good hands. If my impression is correct, then the weggies from Australia are in the best shape and doing much better, compared to weggies in other countries.

And I think that I know the aussies's secret.

They have Michelle.

[annekat]

And I think that I know the aussies's secret.

They have Michelle.

Double-like on that one! I'm glad you are back posting and hanging in there.... 75mg. pred is a lot... I hope Michelle could be right and you are feeling joint pains from WG and possibly not from RA? But then, listen to your docs as long as you feel they are competent. Best of luck with it all.

[BookNut]

Hi Breezy! Welcome to the best medical forum ever. I hope you are feeling better. Prednisone at high levels is the pits. It messes with my disposition. And I have to go over and over important things like sorting my medicine, because it is so easy to get distracted when the brain is on a prednisone buzz. You will find tons of helpful advice here from some very awesome folks. Hopefully you will find a med regimen that works well for you!

[mishb]

Welcome bre. I think you are in good hands. If my impression is correct, then the weggies from Australia are in the best shape and doing much better, compared to weggies in other countries.

And I think that I know the aussies's secret.

They have Michelle.

Thank you lovely lady, but I don't believe that I can take the credit for this one

It is true that we do appear to be fairing better than others, but there are some that are still in a bad way.
I believe that if you find the right specialists, that most of the time things will be on your side.

I'm sure it also has a lot to do with this fantastic forum, and also our Aussie leader Andrew, and I can't go past the fantastic members of our Aussie and New Zealand facebook group.
A special mention also goes to Dr. Phil and Batman, and Jack and Al and Lightwarrior and all others that are watching over us.

[mishb]

Andrew puts it down to the high quality beer

[Alysia]

Thank you for remembering dr. Phil. He is taking care of weggies all over the globe and when they die he is the first to welcome them to heaven and to show them around.

Your credit is still valid. And I guess your docs are more decent and serious.