Hi everyone,
I joined last year, when doctors suspected GPA and were investigating the cause of all my problems...well, now its official. I was diagnosed December 2nd 2015...a couple weeks before Christmas. Its been a whirlwind of doctor appointments, meds and just trying to deal with everything. The more I learn, the more I think, why me. I am trying to stay positive but it's hard when your looking at all the info that comes with the diagnosis. So far, I have been very lucky and haven't had kidney involvement and my lungs aren't too bad. I get a lot of bronchitis, virtigo (that leaves me bedridden and vomiting for days/weeks) eye issues, muscle and joint issues, ear problems ugh. But the fatigue, cognitive issues and malaise is what gets me the worst. This disease has taken ME away...and I am desperate to get some kind of normal back. Sorry for the long rant and woe is me...I just feel so alone at times...my close family (mom, dad, brother, sister inlaw) they are very supportive and have looked into what GPA is, but my other family havent, its like, Oh yeah, its that thing you have. :/
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