Use the "find a zebra" website to see what it kicks out for possible diagnosis. I used it several times and Wegs always came out one or two depending upon what symptoms I listed.
I know there are are very rare and not nice diseases or problems that often defy diagnosis. i was talking with a former co-worker today a (RN) who has some kind of auto immune disorder but not even Mayo could diagnose it with any certainty but the treatment is for the symptoms so she often uses Prednisone but has had bad reactions to it with side effects. She got serous cataracts after six weeks of moderate dosage and needed surgery.
Last edited by drz; 01-09-2016 at 02:26 PM.
Knowledge is power! Wisdom is using it to make good decisions!
Interesting is there a link for that website?
Sent from my SM-G900I using Tapatalk
Drz, hello. Hey Drz,I forgot about that sight from a few years back, can you post it, please, or tell me the name? I can't remember... Thanks in advance Drz! Nice seeing you, Drz..... Debra.
Drz, hi. Got it. Just curious, are we not supposed to mention links? I apologize if were not? Anyway, thanks Drz... Debra.
Its ok I found it thanks by good old google 😊. Im curious also if anyone with conductive hearing loss has had ventilation tubes inserted? Im keen to give that a go and possibly culture the fluid which I firmly still believe is a bacteria that is causing all this that hasn't responded to antibiotics. Although the lung nodules are suspicious.
Sent from my SM-G900I using Tapatalk
My eardrums burst on their own before tubes could be inserted. The tubes are for drainage and release of pressure. My ear infection was also antibiotic resistant and my ENT was unable to get a culture to grow.... maybe he waited too long or there wasn't really much bacteria in there, since Wegs can mimic these things. However, Wegs had not been thought of as a possible cause, and the infection did clear up after using the big-gun antibiotic Levaquin. But this WAS, no doubt, the start of significant Wegener's activity in my body, and a big antibiotic-resistant ear infection at the beginning is not at all uncommon. DX was delayed while I went through 2.5 years of what appeared to be sinus infections, allergies, and both conductive and neurosensory hearing loss. BTW, the holes in the burst eardrums did heal quite nicely on their own, though since then, one of them has been destroyed by erosion from WG disease activity. So I'm getting by with one ear with a hearing aid, which hears quite well even though it started out to be the worse, nerve-damaged ear. What a weird disease.
Anne, dx'ed April 2011
Weird indeed...yeah I just cant help but think theres still an infection going on but none of the drs really wants to listen to me.
Sent from my SM-G900I using Tapatalk
Bookmarks