Thought I would raise this one as it has come up in another thread and I think it is a subject we can neglect given all the other problems we have to take on board.

In my own case, I can no longer do much around the house and most of the physical work load falls on my wife. We live some way from our families, so can't look there for help. However, the aspect I'm more concerned about is mental strain which I'm sure is affecting my wife and two daughters. They see my condition deteriorating as the years pass and frankly, they're scared!