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Thread: How does your Wegener's Affect your Family?

  1. #11
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    I was just thinking about Pred as well. I thought maybe I am having more of a problem with inflamation and the Pred would take care of that.

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    I agree with Sangye. Need to do something tommorrow. Don't want to get worse and then there is more damage. Keep us posted, have a good night sleep.

  3. #13
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    Phil, cytoxan definitely a huge immunodepressant so no taking of the sleeping potion. I tend to medicate myself as needed with pred. If you can't see a physician in the next few days because of new years and weekend either go to emergency or at least see if a specialist talks to you on the phone and gives you a prescription for preds.
    Jolanta

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    Quote Originally Posted by jola57 View Post
    I tend to medicate myself as needed with pred.
    So do I on rare occasions, but it is not something I would recommend. You don't want to become too off hand with the use of a powerful and toxic drug that has lots of serious side effects.

    (just a little reminder there)

    (this thread is drifting off subject and I'm being as bad as anyone )
    Last edited by Jack; 12-30-2009 at 08:20 PM.

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    I started it all.

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    I talked to my ENT this morning and told him my symptoms and that I thought I was having a flare. He didn't want to take my Rheumy's place by prescribing me Cytoxan or anything like that. He thought I would be able to see my Rheumy on Monday. I asked him if I should go to the hospital and get admitted and get IV Pred, etc. He said it would probably be best if he prescribed me 50mg of Pred and Moxifloxacin. The latter was quite expensive, $105.00. Hopefully the Pred will kick in soon along with the antibiotic and hopefully I can see my Rheumy on Monday or Tuesday. Thank God I was able to talk to my ENT today. He said there is no sense making a long trip if I don't have to and spend 5 days in the hospital. He also said it would be doubtful I would be admitted.

    Thanks to all of you.

  7. #17
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    I understand that no ENT guy should prescribe cytoxan. The prednisone will help, but hopefully you will see your Rheumy Monday. Your really need to get the kidney checked out and get proper treatment. Let us know how the prednisoe is going. Did you take it yet?

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    Ditto to everything Elephant said!

  9. #19
    Doug Guest

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    I wanted to kick your butt first, Phil, but Sangye is feeling better, and beating everyone to be first in line!

    Yes. Yes. Yes. Get that appointment ASAP. You are showing too many signs of a flare to mess around with a wait until the start of next year. I hate ENT doctors to hell, but, in a pinch, go with what you can get because the crusting and closing off of your one nostril has to be a major impediment to sleep if nothing else. Let us know if our nagging helped.

    Cytoxan is the major immunosuppressant typically in use at the start of treatment of WG flares. Sangye brought that to your attention. Whatever you do, Phil, don't add any drugs- especially herbal or over the counter drugs- into the drug mix you are on without first consulting your doctors. You can slow the progress of your treatment or worse if you don't, and you've already had a sxxxload of WG complications since onset. It would be nice to hear everything was going werll with you for a change, especially the sinus crusting issues because that is one of the more- if not most!- frustrating issues we fight as weggies.

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    That was too funny, Doug. I sure have a knack for being feisty. Even when I'm really sick! That and a sense of humor have kept me alive for sure.

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