Joni, thank you for this. It means a lot to me... Not a lot of this in my life, that's for sure... I do care, and you're very sweet, Joni... I am praying for you guys, Joni. Deb.
Joni, thank you for this. It means a lot to me... Not a lot of this in my life, that's for sure... I do care, and you're very sweet, Joni... I am praying for you guys, Joni. Deb.
I was so thankful that blood was found in my urine.......
When I was diagnosed by my ENT, he didn't want to start me on any other medication. I was already on some stuff for Rheumatoid Arthritis.
He wanted to send me to one of the big hospitals in the City, that has a proper vasculitis outpatients centre and let them do the treatment protocol
It turns out that his son is an ENT at this hospital.
Anyway, it took 6 weeks to get in and then the ENT there wanted to do a sinus biopsy to get a proper confirmation. which thankfully was positive.
This ENT department still didn't want me to start any other medication (than the RA stuff I was already on) until I saw the Rheumatologist, which was another 4 week wait.
When I finally saw the rheumatologist, he ordered xrays and bloods and urine test, all of which I had been doing each week, and this time there was protein and blood casts in the urine test, there and then they put me straight into hospital and started the pred and MTX straight away.
Why am I thankful there was blood in my urine test - because WG was finally taken seriously and I started to received the correct treatment for it, and my kidneys are working just fine, not 100% but not a WG issue.
I am now in remission, and Joni, this is what is going to happen for your son too. His treatment is going to work, and remission will not be too far away.
Drink drink drink, water water water, and go to the bathroom often. Just as Birdie says.
All the best for all up and coming infusions
Last edited by mishb; 01-10-2016 at 09:29 PM.
Keep Smiling
Michelle
Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS
Michelle, hi... Couldn't sleep as usual, so... Michelle I seriously just marvel at how different things are there verses here! Oh my goodness its just nuts! I thought blood, actual visible, with a high fever with new symptoms, would finally get me into something for treatment, but no! Even with the new added lung pain for a month. No, nothing... My labs clearly state the abnormalitys, and next to color this last set says amber. Amber urine? I guess I'm just venting here, and a little jelouse as you're health care there seems to Realy rock... Michelle, glad you're well. Joni, stay vigilant, and remember you're son is getting treatment pretty fast, so this is Realy good.... All the best. Debra.
you are advocating for your son - I would do the same thing and as long as he is on board it is a good thing.
Yes - my family does have other auto immune issues. celiac , psoriasis, polymyalgia rheumatica come to mind. Read study where 3 people in one family had it but most info will say not inherited. Still need to know a lot more about this disease
Last edited by Middlesista; 01-12-2016 at 01:47 AM.
Joni, hi. I know I mentioned about other autoimmune issues, so I won't repeat that, but yes get copies of the labs!!! If he's not, not sure you can, since he's over eighteen. These labs, copies are you're right. It's the law. Many times, things are overlooked and you will be the one to spot em. Doctors aren't perfect, and make many mistakes so... Also you/ he can spot upward trends, downward trends by comparing the past labs, ect. Good luck Joni... Deb.
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