Hello from Hospital Bed, Day 11
Howdy from Texas, ya'll. I haven't posted in awhile because I've felt deathly ill, and come to find out, I was getting pretty close! Today is Day 11 of my hospital stay - I had hemorrhagic cystitis from severe Cytoxin toxicity and had internal bleeding from the bladder. I've been transfused 6 times and was in ICU for the first 3 days. I will be finding a new rheumatologist because if I had continued to listen to my rheumy, I'd be dead right now. Even though she was having me get weekly CBCs because my cell counts kept dropping, she kept telling me that my numbers would come back up on their own, that we had stopped the Cytoxin & that should be enough. However, what she thought was a urinary tract infection was actually internal bleeding fron my bladder because the Cytoxin cooked it. I finally went to the ER on my own 2 weeks after stopping the Cytoxin & after my rheumy telling me 3 separate times I would be fine. The ER admitted me immediately & I was put into ICU that night because when they transfused me I almost bit the dust. I don't remember going from a regular room to ICU.
My next decision will be whether or not to even attempt to take Imuran, as I was done with my 6-month course of Cytoxin anyway & am supposed to start Imuran once my blood counts are normal again. I was told I would be on it a minimum of 2 years. I know Imuran isn't as strong as Cytoxin, but obviously my body doesn't handle chemo well. Will be getting a new rheumy & second opinion about this.
I do have to get my bladder scoped in an outpatient surgery in the next few weeks. The urologist wants to rule out that the chemo caused bladder cancer. Praying that all is fine in that area & it was just damaged by the chemo.
Praying for the best health for ya'll during the holiday season & beyond.
Teri in Texad
Teri from Texas
Diagnosed w/WG March 2015
"Lord my God, I called to you for help, and you healed me." - Psalm 30:2
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