Presentation with Vision loss

[debra]

Ear not air!!! Why I can't edit,I just don't get! I try,and it won't let me! So while the eye thing,the ear thing was happening... So sorry for typos! Deb.

[Middlesista]

yes Deb - starting your treatment to get rid of that granuloma!!!

[annekat]

Ear not air!!! Why I can't edit,I just don't get! I try,and it won't let me! So while the eye thing,the ear thing was happening... So sorry for typos! Deb.

I was teasing. I don't comment on all your typos. I have let a couple of typos slip by myself lately, because I don't see them until after the post, and then haved skipped editing a couple times. For small things like it instead of in.

[Hal]

Middlesista,

I had both hearing and some vision loss when I was originally getting sick, and the inflammation was increasing. Neither the ENT doctor nor the Eye Surgeon were able to see the bigger picture and each treated their area-of-specialty. In the case of the ears they filled with fluid and I had to get shunts in my eardrums to drain them, and be able to hear again. The vision loss was quite worrying, and I assume it was the inflammation affected the optic nerve. Thankfully around then I got a proper diagnosis, and when we piled on the anti-inflammation drugs prior to the main treatment, things settled down.

Vision, hearing, sinuses, lungs, nerves, circulation and myriad other things suddenly going wrong for unexplained reasons - all very scary when it first hits you. Much of it due to inflammation IMO.

[Middlesista]

Hi Hal - your hearing and vision presentation, seems like docs are hard pressed to put it all together. My initial ENT felt it was all viral and even knowing my history of elevated inflammatory markers was not able to put it together and I did lose my hearing suddenly which goes along with SSNHL. It was the vision loss that started the road to diagnosis.

How are you doing now Hal?

[Hal]

Still got swelling and nerve damage that requires pain killers. It is what it is. :-)

[Middlesista]

Chronic pain is so tough and neuropathy can be so relentless. Have they used neurontin