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Thread: lung issues

  1. #1
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    Default lung issues

    I had mentioned this issue in another post with the steroid-induced hyperglycemia, but figured it deserved its own thread in case anyone is searching for a similar situation.

    I had more tests today and another appt with a pulmonologist. He showed us pictures of my collapsed lung. Its really not collapsed, but is actually an elevated diaphragm because of an unknown issue with the diaphragm. I believe technically it is called an elevated hemidiaphragm. The docs have ruled out a paralyzed diaphragm and an enlarged liver (liver is normal).

    Its amazing I can breathe at all – the right lung is 50% gone, but that’s not the worst of it. They also found a granuloma in front of my trechea. Not only is that restricting me from breathing, but it acts as a restriction that causes the air from one lung to simply go to the other lung when I do breathe, so I’m not getting much exchange of air. The granuloma measures about 1.7cm x 2.2cm (golfball?). I keep thinking maybe they are mistaken and all they’re seeing is an air pocket left over from when I had my thyroid removed, but that’s probably more denial than anything. There are likely more granulomas lurking around, so they were recommending surgery vice some sort of non-invasive removal so they could look around a bit.

    Anyway, the docs put me on 40mg pred and gave me enough to get home. That’s the same thing the Las Cruces hospital did 5 and half years ago. We’ll be home in about a week unless the pred does the same thing it did the last time I was on those heavy doses. At that time, I drove 700 miles a day and still had energy left. Anyway, we’ll be home whenever (pending weather) and then on to surgery of some kind.


    This is the right vs left lung. You can see how the right is elevated. The white spots in the lungs are mostly end-points for airways, but some are granulomas from wegs damage.
    lungs.jpg


    And this is the granuloma causing one of the restriction problem, but there are other issues, too. For instance, they still don’t know why the right lung is elevated.
    granuloma2015.jpg
    Last edited by vdub; 11-19-2015 at 06:01 PM.
    Wegener's (​GPA )- Apr10, Granulomatous Hypophysitis - Apr10, Diaphragmatic Paralysis - Feb16, Bradycardia - Dec16, Fibromyalgia - 2017. (my story)
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    I'm sure none of this is allowed vdub.

    The rotten WG dog is such a mongrel and should never be allowed to attack so many areas at once

    Those pictures are so impressive but they are not bearing news that you or any of us would want to hear.

    Much love to you and wishing you safe travels back home.
    I know once you are there you will start to feel much better, as you have done many times before.

    Take care
    Keep Smiling
    Michelle


    Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS

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    Just had my lungs xrayed, and have a lung function test next week, the xrays look good, compared with the one taken over 2 years ago, I will see the specialist next week after lung function test, all the best vdub, hope you dont get a speeding ticket with all the pred in your system.

    Regards Woz...

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    Safe travels, successful treatment, and speedy recovery, my friend!
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

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    Thanks, guys! I'll keep you posted.... no worries...
    Wegener's (​GPA )- Apr10, Granulomatous Hypophysitis - Apr10, Diaphragmatic Paralysis - Feb16, Bradycardia - Dec16, Fibromyalgia - 2017. (my story)
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    Quote Originally Posted by vdub View Post
    This is the right vs left lung. You can see how the right is elevated. The white spots in the lungs are mostly end-points for airways, but some are granulomas from wegs damage.
    Take it easy driving vdub.

    Andrew, I'm still waiting for a "Damn that sucks" button.

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    oh, no. I am sorry vdub. its too much... I think that pred is not enough to take those granulomas away. will you get something more to beat them ? how much are your sats ? are you on exygen ?
    sending my prayers and love. hang in there.
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

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    My gosh vdub you just can not get a break from this crap. That is some pic of your lungs. Do you think rtx might reduce the size the of granuloma or is surgery the only option. And like Mike with his upcoming surgery,do you have to be off pred ???? Please have safe travels home. Keeping you and everyone here in my prayers
    Life isn't about how you survive the storm, but how to dance in the rain !

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    Amazing pix you posted, but not a happy pix. Sorry to hear about it so best wishes for good surgery results and quick recovery. The fact that you have such an active lifestyle and can do so much with the medical issues you have constantly amazes me and makes me feel like shirker. You are an inspiration. Hope things get better soon.
    Knowledge is power! Wisdom is using it to make good decisions!

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    You sure do take a lick'n and keep on tick'n. I can't believe all the things you have had to deal with lately. We do need a that sucks button. I am glad you are headed back home and wish you all the best with getting rid of that large granuloma quickly. I think after this, maybe it's time for you to have only good come your way. Please take care of yourself.
    Jana


    Do not fear anything, just do it afraid!
    It does not matter how slowly you go, as long as you do not stop!


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