User Tag List

Likes Likes:  0
Page 3 of 20 FirstFirst 1234513 ... LastLast
Results 21 to 30 of 191

Thread: lung issues

  1. #21
    Join Date
    Nov 2010
    Location
    ~46N1165W
    Posts
    1,938
    Post Thanks / Like
    Mentioned
    25 Post(s)
    Tagged
    0 Thread(s)

    Default

    Well, we made it home. I can tell the lungs are getting progressively worse. Thanks for everyone's kind words. At this point I have no idea what they are going to do. My first doc appt is Wed, but, now that we are home, I'm going to try and move it up a couple days.

  2. #22
    Join Date
    Nov 2011
    Location
    Ohio
    Posts
    1,970
    Post Thanks / Like
    Mentioned
    1 Post(s)
    Tagged
    0 Thread(s)

    Default

    Glad you are home,I bet that was one of your longest rides. I am sure you will sleep good tonight in your own bed. Hoping to can see the dr sooner. Take care
    Life isn't about how you survive the storm, but how to dance in the rain !

  3. #23
    Join Date
    Apr 2011
    Location
    Olympia, Washington
    Posts
    6,992
    Post Thanks / Like
    Mentioned
    24 Post(s)
    Tagged
    0 Thread(s)

    Default

    This is not good to hear, though I'm glad you are home and that should relieve some of the stress. I do hope you can see the right doc sooner than planned.
    Anne, dx'ed April 2011

  4. #24
    Join Date
    Mar 2012
    Location
    Suburban Columbus, Ohio, USA
    Posts
    2,370
    Post Thanks / Like
    Mentioned
    20 Post(s)
    Tagged
    0 Thread(s)

    Default

    Glad you're home safely. Hope you can see your doc tomorrow and get things taken care of.
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

  5. #25
    Join Date
    May 2013
    Location
    Australia- Northern N.S.W
    Posts
    171
    Post Thanks / Like
    Mentioned
    1 Post(s)
    Tagged
    0 Thread(s)

    Default

    Its good to see you made it back home safely, all the best at the doctors, a quick oil change and a polish, and you will be back to new in no time.

    Take care, Woz...

  6. #26
    Join Date
    Dec 2010
    Location
    Melbourne, Australia
    Posts
    2,751
    Post Thanks / Like
    Mentioned
    12 Post(s)
    Tagged
    0 Thread(s)

    Default

    Sending big hugs and healing vibes your way.

    I'm glad you made it home safely and hope you can get into the doc earlier
    Keep Smiling
    Michelle


    Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS

  7. #27
    Join Date
    Oct 2010
    Location
    Ohio
    Posts
    819
    Post Thanks / Like
    Mentioned
    3 Post(s)
    Tagged
    0 Thread(s)

    Default

    So glad you are back home, from your adventures. I am wishing you all the best at the doctors. Keep your good humor and take care.
    Jana


    Do not fear anything, just do it afraid!
    It does not matter how slowly you go, as long as you do not stop!


  8. #28
    Join Date
    Nov 2010
    Location
    ~46N1165W
    Posts
    1,938
    Post Thanks / Like
    Mentioned
    25 Post(s)
    Tagged
    0 Thread(s)

    Default

    Saw my rheumy yesterday. He said my elevated lung has been that way since a 2013 ct scan, so probably isn’t an issue. He is more concerned with the “granuloma” (they call it an anterior mediastinal mass) that is on my trachea. There is no evidence it is a granuloma or even connected to wegs. But for simplicity, I call it a granuloma – sounds nicer than tumor. Whatever it is, it seems to be the issue.

    It will be a month before I even get an appt with a pulmonologist and then another month to get a biopsy. I doubt I’ll have any answers before the end of Feb.

    Breathing is difficult, but not life threatening at the moment. At this point I’m in not any of danger of suffocating or anything – I think that point would sneak up on me kind of slowly. So I can still drive safely and do most things I want to do, but I have to do it slowly. Even tying my shoes is hard – I have to pause between each one so I can catch my breath.


    My rheumy told me to simply go to the ER if it gets bad. Its uncomfortable and I can’t do a lot of things very fast and I can’t do some things at all. No worries…. I now have time to work on the interior of the MG.

  9. #29
    Join Date
    Apr 2011
    Location
    Olympia, Washington
    Posts
    6,992
    Post Thanks / Like
    Mentioned
    24 Post(s)
    Tagged
    0 Thread(s)

    Default

    Thanks for the update about what is really going on. Seems like an ENT might be just as likely as a pulmy to deal with things in the trachea. I only ask because I have both kinds of docs and I'm never sure where the trachea ends and the more lung related structures begin. I had some problems in my larynx early on, which my ENT dealt with; I guess that is at the top of the trachea. A friend had her cancerous thyroid gland removed by my ENT because it is in the throat. I guess if it is causing your difficult breathing into the lungs, then yeah, it would be a pulmy who would deal with it. I just hope they can get it out of there smoothly and you will feel much better. I must say, here in Olympia, it seems much easier and faster to get an appt. with a specialist, a biopsy, an appt. for surgery, any of that... More doctors, I guess, even if none of them are WG specialists.....
    Anne, dx'ed April 2011

  10. #30
    Join Date
    Mar 2012
    Location
    Suburban Columbus, Ohio, USA
    Posts
    2,370
    Post Thanks / Like
    Mentioned
    20 Post(s)
    Tagged
    0 Thread(s)

    Default

    Vdub,

    Guess it's good news as far as it goes. Take it easy and enjoy the MG.
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

Page 3 of 20 FirstFirst 1234513 ... LastLast

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •