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Thread: 20 year old son

  1. #51
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    Went for blood work today.
    The doctors were very pleased, thank God.
    creatinine level went down to 1.92 (after he has been drinking almost 3 liters of water daily).
    Other blood counts and inflammatory markers were also pretty stable.
    Starting rituximab second does now.
    He has been having bloody noses at night, so an ENT will take a look.
    Otherwise.....more ice cream!

    Thank ya' all.

  2. #52
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    Anne! Hi! God bless u,Anne..... You all helped me to see more clear... Getting motivated for tomorrow! Deb. Who thanks to the people here,is no longer dreading pred. Maybe just a little.....

  3. #53
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    So he's on the second dose of rtx. Within minutes after they started his face turned beet red and it became difficult for him to breathe. He felt like he was ready to pass out. We called the nurses and they stopped it. They gave oxygen and some fluid in iv. After a break, he fell asleep and they started it again. He is much calmer now.

    Sent from my SM-G920V using Tapatalk

  4. #54
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    Happy to read he's doing better! Best of luck to u both... God bless u both... Deb. Who worked up the guts to venture off her thread,and actually post!

  5. #55
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    Quote Originally Posted by debra View Post
    Happy to read he's doing better! Best of luck to u both... God bless u both... Deb. Who worked up the guts to venture off her thread,and actually post!
    And I am thankful for your guts.

    Sent from my SM-G920V using Tapatalk

  6. #56
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    Ha ha,me too.. getting to caught up in me! Although we have some good laughs over there! Need to laugh as this is a sucky sickness! Deb.

  7. #57
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    Quote Originally Posted by debra View Post
    this is a sucky sickness!
    Hey, there's a quote I like: "sucky sickness"... sorta flows off the tounge and say's volumes in just two words. But still, bug hugs is a little better.

  8. #58
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    Birdie! Man you're so funny... You're like a breath of Realy fresh air,in a Realy polluted world.... Deb. Reflecting on Birdies comments,and smiling.....

  9. #59
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    Our daughter had a bad reaction to Rtx once; pretty scary (okay, terrifying) but since then they've gone well, and slooooooowly. BTW, if he's at Rainbow I might have connections there.

  10. #60
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    Quote Originally Posted by whatthewhat View Post
    Our daughter had a bad reaction to Rtx once; pretty scary (okay, terrifying) but since then they've gone well, and slooooooowly. BTW, if he's at Rainbow I might have connections there.
    Thank you so much.
    The rest of the day went well.
    He relaxed thru most of it, and he is now sleeping in his bed at home.
    Much appreciated.

    Sent from my SM-G920V using Tapatalk

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