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Thread: 20 year old son

  1. #181
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    I see one of the citations in the article has even more information - and from closer to home. http://www.tandfonline.com/doi/full/10.1586/eci.11.75

  2. #182
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    I hope your son is doing much better and that you were able to catch some rest too.

    Was that IV the last one ?

    Sending prayers. Please update us.
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

  3. #183
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    Quote Originally Posted by Alysia View Post
    I hope your son is doing much better and that you were able to catch some rest too.

    Was that IV the last one ?

    Sending prayers. Please update us.
    Thanks for the prayers.
    I'm not sure what you mean by the last one.
    Twas the second half of the fourteen days.

    Sent from my SM-G920V using Tapatalk

  4. #184
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    In each round of rtx some of us are getting it in 4 infusions. Some in 2 infusions. What I asked is if he finished this round and doesnt need more rtx infusions ? Until at least 6 months away from now ?
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

  5. #185
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    Well, it was the second of two. But less than 50% done. Rtx is probably no longer an option.

    Thanks for asking.

    Sent from my SM-G920V using Tapatalk

  6. #186
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    Quote Originally Posted by Aneinu View Post
    Well, it was the second of two. But less than 50% done. Rtx is probably no longer an option.
    Do you know how much solumedrol they were giving him for the infusions?
    MikeG-2012

    "You never know how strong you are until being strong is the only choice you have"


  7. #187
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    Does 100/125 make sense?

    Sent from my SM-G920V using Tapatalk

  8. #188
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    Quote Originally Posted by Aneinu View Post
    Does 100/125 make sense?
    Yes, the real protocol, that many doctors don't use anymore, is 1000mg. Reduces inflammation a major amount.
    MikeG-2012

    "You never know how strong you are until being strong is the only choice you have"


  9. #189
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    Quote Originally Posted by MikeG-2012 View Post
    Yes, the real protocol, that many doctors don't use anymore, is 1000mg. Reduces inflammation a major amount.
    Wow.
    In our upcoming visit, I will ask.
    Thank you.

    Sent from my SM-G920V using Tapatalk

  10. #190
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    I am sorry rtx is no longer an option. I hope that what he did get will help him and that they will give him another med without more events. Please update us. Keeping him and you in my prayers.
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

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