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Thread: 20 year old son

  1. #131
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    Thank God the rashes are really down now. They are monitoring him for the day. We will see if blood work hints at anything.

    Thank you

    Sent from my SM-G920V using Tapatalk

  2. #132
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    I'm so sorry to hear about the problems your son is having and also that your new granddaughter has health issues. I hope that both of them start feeling better soon.
    My thoughts & prayers go out to them and your family.

  3. #133
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    Head rheumy does not like the way rashes look. Not releasing him today. Gonna hit him with three doses of 40 mgs of steroids and reevaluate then. She still thinks it's viral and perhaps the wegs is not letting it heal as fast as without it.

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  4. #134
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    Default 20 year old son

    Keep us updated!
    Trust in the Lord with all your heart
    and lean not on your own understanding;
    in all your ways submit to him,
    and he will make your paths straight.
    Proverbs 3: 5-6

  5. #135
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    Only now I read it. I am so sorry about the rash. I hope that while I write this post, Yosef is already getting better. I guess the questions are: is it a virus ? An allergy ? A reaction to rtx ? Wg symptom ? Do the blood tests show any direction ? Please update us.
    Sending prayers for Yosef and for your new grandaughter. Health for both. הרבה בריאות ונחת. מזל טוב. ♡
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

  6. #136
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    Thank you.
    They think it's viral.
    They didn't do blood tests.
    It is almost completely cleared up.
    They will release him at 2:00 today God willing.
    They will keep him on 60 mg prednisone for several days.
    Hopefully, he can have second half of rtx treatment Wednesday or Thursday.
    שבת שלום וחג שמח

    Sent from my SM-G920V using Tapatalk

  7. #137
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    Thanks God that it is cleared. After getting rtx, viruses can catch us weggies more easily. I also caught one right after mine a month ago. (Not rash). When I went to the second IV I washed my hands all the time.
    שבת שלום וחג שמח ♡
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

  8. #138
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    It's strange his doctors don't wanna admit that he could have been more susceptible to virus because of weggies.

    They will concede that perhaps it was harder to fight back because of it.

    Sent from my SM-G920V using Tapatalk

  9. #139
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    Quote Originally Posted by Aneinu View Post
    It's strange his doctors don't wanna admit that he could have been more susceptible to virus because of weggies.

    They will concede that perhaps it was harder to fight back because of it.

    Sent from my SM-G920V using Tapatalk
    Having Wg and getting immune suppresive meds made us more susceptive to viruses and germs. He might even caught it at the same day that he got the rtx, in the hospital environment. I think I caught the virus at the clinic where they gave me the rtx. Maybe this is why they can't addmit it ? I wonder if there were more cases of this virus around.
    I would also keep the other options in mind anyway.
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

  10. #140
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    Doctors said they have been seeing funny viruses lately (I think they always say that). As it was a week after rtx they don't think it was related.

    He did have spots on knees and elbows soon afterwards, where one weggie told me from his doctor that this is a sign of active wegs.

    Not sure, however, if the spots/pimples were related to big rash all over.

    Sent from my SM-G920V using Tapatalk

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