Originally Posted by
Aneinu
Well it's been a while.
Lots of new threads since I last posted.
Hope and pray that everyone is on the recovery road.
My son is turning 21 this month. After his initial dose of rituximab he was able to lower his prednisone to 5mg per day. He was getting back to himself. He did rewrite sinus surgery several weeks back, but they think that was unrelated. He was looking better, as his weight and puffiness was going away. Yes, past tense. Two weeks ago, he started once again experiencing joint pain, hands and feet. He started swelling as well. He was in pain but didn't wanna admit it. His blood work came back positive except his inflammatory markers. Throughout recovery, his b cells did not return and they couldn't do second dose of rituximab. They still did not return. When he was first diagnosed, his inflammatory markers (what is medical term for that?) was over 1000, eventually it was down to 20. Now, it is 300. They upped prednisone to 15/20. They are thinking of putting him on methotrexate, which he does not like, due to the nausea. He is not doing well emotionally. For some reason, he thought he had this beat. It is a letdown and depressing. We are trying to be encouraging, but it is difficult, especially now that he is back in school.
Two questions please (basically one):
1. Is this an indicator that b cells will be returning?
2. Is there connection between inflammatory markers and b cells?
Thank you, and let's pray for all of us.
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