Welcome to the "club", Pugdog! Sounds like you're in pretty good shape for the shape you're in.
Where are you from? What treatment are you getting now? Are the wegs drugs you use similar to what you use to prevent rejecting your kidney?
I'm coming up on five years since disease onset. I was diagnosed about a month after symptoms appeared. For the most part, I've also been able to live a near normal life. I retired about nine months before disease onset, so I have a lot more freedom about what I do or don't do. I'm currently taking 5 mg/day of prednisone and bactrim 3x weekly. I use rituximab as needed when symptoms start to appear. I have a little kidney damage, about 40% hearing loss, and some sinus and lung damage that has almost completely healed.
Hope to hear more from you about life with our dumb disease.
Pete
dx 1/11
"Every day is a good day. Some are better than others." - unknown
"Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD
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