I worked with misdiagnosed wegs for 2 years. That was hell and i changed careers to psychotherapy thinking it would be more sedentary. Worked sick on mtx and pred for about another 4 years. Then i just couldnt anymore.
Built a business i can do from a hospital bed. But even that i have to be careful. Stress is a trigger for wegs. So low stress work that keeps me positive and building stamina is good. If i exhaust myself and wegs gets on top it can catastrophic.
Im thick headed with a built in "forgetter". I made myself stickers that say:
NUTRITION
RAISE ANABOLISM (pred is catabolic)
RESTORATIVE SLEEP
STRESSORS INT | EXT
Thats my first things first plan. If i do that ahead of work I stay out of the hospital. If not it can take years to recover from a severe wegs attack.
Sent from my SM-G925V using Tapatalk
Best wishes,
Tom
----------------------------------
2 years untreated. Dx w/ biopsy - 2000
Tx Plan:
NUTRITION
RESTORATIVE SLEEP
RAISE ANABOLISM
REDUCE ALL INT / EXT STRESSORS
Bookmarks