It's about 7:50 AM I'm sitting here in my hospital bed waiting for the chief of pulmonology to talk to me about my EBUS this morning and reading posts. I can honestly say I was less afraid taking guns from bad guys as an NYPD Detective then I am of reading these posts, but I can't stop myself. I don't have the heart to give you my full story now waiting here for this damn test, but I will when I can start wraping my mind around this curse. Short synopsis for now is that I had a PET/CT about two weeks ago and my kidneys and lungs lit up like a Christmas tree, my pulmonologist Dr. Caruso who I can honestly say I now love, pulled this amazing diagnose out of his magic hat and said that he had never seen cancer in both kidneys and he really believed that it was wegs or goodpasture, because he had a case 25 years ago, so he did a blood test, not to sure what it was I think ANCA, and it tested 100 percent. Meanwhile I continued with my needle biopsy of the kidney nodules waited another week not really believing it was a rare disease but more like stage 4. The results on the needle biopsy were again Wegs, what a call Doc, I love you man. In the meantime while waiting for all these tests time is passing and I am having really bad pains in all my joints, my neck, fatigue, and kidney pains. I'm making this longer then I thought I would because I'm still waiting for my test ( I hate hospitals) by the time I got into his office on Wedsnesday it felt like someone was stabbing me in the chest and ripping the knife down into my left kidney. The official report was not written out yet so Dr. Caruso called the pathologist and confirmed it over the phone, and would not let me go home and admitted me. So here I sit for five days on 80 mg of steroids feeling so much better waiting for this EBUS because all these so called specialist have never seen wegs light up on a PET scan, and since the pet was done about three weeks ago, a large mass has grown around the lymph node in my lungs, and they want to be 101 percent sure it's not cancer also, can never be too sure! I've been a cop a long time, I apologize if I'm a little cynical. I was told I will only be the second person certified with Wegeners Granulomatosis as a 911 disease, and I truly believe that, and I think anyone else would too if you saw the stuff I was breathing down there for 12-18 hrs a day for weeks on end, with only a BS paper mask, after having no mask the first few days. I am also seeking a favor I would really love to talk to the other person that was certified, if by chance they are on this forum, and anyone knows of them. I am in New York, and again I really apologize for the long rant, I guess I don't have to go into the full story anymore, since I basically told it.

Thanks for reading
Age