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Thread: Omg pain!!!

  1. #1
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    Default Omg pain!!!

    It's all I can think about. I can't get comfortable no matter where I am ... chair, my amazing Tempurpedic Cloud Supreme, one pillow, two, stack them up to make me elevated, sitting on the couch. Standing, sitting. It doesn't matter. I can feel my shoulders, my hips, my knees, my ankles, the joints of my toes, my wrists, the left thumb, my neck, elbows ... It's almost as if I can picture every joint in my body and it's red and angry.
    My face hurts and I keep getting hot flashes. Doc says she wants to talk to me on the phone but I have no idea when that will be. Obviously not today ... maybe tomorrow (Wednesday)??
    I have taken an 800mg Ibuprofen. Nothing. Not even the slightest teeny bit of relief. Now, I'm getting a headache. I want to cry so damn bad. I can't think of anything else. I was going to write today but I can't wrap my mind around my characters, or the English language. I can't type correctly, words fail me.
    I'm staying home from work tomorrow if I feel like this. Although, I don't know what good that will do since I can't get comfortable ANYWHERE. I wish I had a hot tub, or even a bathtub that was big enough to be in. I need to soak in a giant vat of warm water with lavender or something.
    I tossed and turned all night last night. There was NO possible way to get comfortable. I couldn't lay on either side because of either shoulder or hip. I laid on my back and then that hurt everything.
    Thankfully, it's not very busy at work. I don't have to concentrate too hard.
    I have no words. I'm miserable.
    Officially Diagnosed 07/31/2013

    My blog: http://nikkinicolealison.com

    "It's no use going back to yesterday because I was a different person then" - Alice in Wonderland

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    Quote Originally Posted by NikkiNicole View Post
    I want to cry so damn bad. I can't think of anything else.
    Don't cry, I'll do it for you. Others also I'm sure.

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    Keep your head up, I'm going through the exact same thing. Some days (most) are worse than others, but it's the snotty days that make me appreciate the good ones .... (Sorry if that sounded like a motivational poster )

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    No apologies for being a Motivational Poster! It's a tremendous comfort to know that I am not alone. The people around me at work right now, they don't understand. They just don't get it. It's like I am crazy or making it up. If they only knew how badly I want to burst into tears. But, you're very right. It's days like these that make me realize when things are good ... they are really quite awesome.
    I'd take even half awesome right about now. Or just to not feel pain ... to just have five minutes of "ahhhhh"
    Officially Diagnosed 07/31/2013

    My blog: http://nikkinicolealison.com

    "It's no use going back to yesterday because I was a different person then" - Alice in Wonderland

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    Isnt all these enough severe to get a serious treatment ? Please Nikki, can you go and demand a decent treatment ? Demand it from your doc. Asap. Ok ?
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

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    You need to be back on pred for starters.
    I remember these pains well. Actually I don't remember them being like that, I have blocked them from my memory,
    until you mention them and then I am crying with you

    These pains are not to be messed with. This weggie dog has well and truly woken up.

    Nikki my love, please go an get some help. You deserve to feel better just as much as the next person.
    Keep Smiling
    Michelle


    Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS

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    I'm with Alysia and the others, pain has a meaning & pain that bad needs the attention of your doctor.

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    Nikki call your dr or go to the er. You need to be on something,even if it is just pred for now.Or maybe at the er they can give you something to relax you and help with the pain. Please go,don't wait until you get worse
    Life isn't about how you survive the storm, but how to dance in the rain !

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    I agree that pred would likely help, and if you have any sitting around, just take it! I'd suggest 30mg. at least, if the pain is that bad, though you know yourself and pred better than I do and probably know what amount would help... Just to get you through the time until you can see your doc or go to the ER! Hopefully your doc will get you a prescription over the phone. Beyond that, you need to get to the bottom of why these things keep happening! The care of a real specialist would sure help.
    Anne, dx'ed April 2011

  10. #10
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    I don't remember if I updated this thread or not. I emailed my rheumy almost begging for pain meds. I can't sleep at night and it's really started to affect me. She wrote back that, if it's fibromyalgia, I can't take narcotics so ... she's going to wait. Unfortunately, she said if its not fibro ... then I need to ask my GP for narcotic medication.
    My GP who is on maternity leave.
    I've been seeing either a DO or an NP whenever I go to the regular doctor and they always look at me like I've made up some condition on a whim ... they don't know what it is. I already get treated like I am seeking pain meds when I go to the ER ... and now I am supposed to ask these people who know nothing about me for pain meds? And that is only if she cannot make the fibro diagnosis. We are going to have a phone appointment but when I called her office the soonest apt was the 8th.
    My desperation is growing by the moment.
    Officially Diagnosed 07/31/2013

    My blog: http://nikkinicolealison.com

    "It's no use going back to yesterday because I was a different person then" - Alice in Wonderland

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