Thanks for letting me know your situation with this, Birdie. My problem is, my last several urine tests have all showed bacteria and mucous, which you would think the 80 mg I take of Bactrim EVERY DAY would be taking care of. I will occasionally feel a tiny burn after peeing, but not like I have in the past with other severe UTIs. I don't have the critical urge to pee and then nothing comes out - I just hardly ever have the urge to pee. I know my kidney disease doesn't help that all, either. The only time I actually have the urge to go, is pretty much all night long when I don't want to. LOL The thing that I don't understand why I'm getting it is the severe abdominal cramps out of nowhere 2-3 times a day. Like, curl up in a ball and groan cramps. I also look bloated in the stomach somewhat.....however, my liver tests are fine. Kidneys are a little more messed up than normal, serum creatinine 1.74 and eGFR 36. Plus, I'm fighting off yet another head cold, which happens every month now. Blowing out the grey rubbery fungal blobs again, sore throat, swollen neck lymph nodes, low-grade fevers, extreme exhaustion, night sweats - just your normal "I feel like total crap" Weggies feeling.
One new symptom I'm having that I've never had before is having a bit of a hard time swallowing. I've got a ton of sinus drainage and am having to swallow a lot, but it's like I'm telling my throat, "Ok, time to swallow saliva!" and my throat is saying, "Huh? Swallow? What in the world is that?" I finally am able to get the saliva swallowed, but it's taking a good deal of time convincing my throat muscles to cooperate. It's very strange as I've never experienced this.
I am going to see my primary care doctor next week, as he is very attentive and I believe will definitely listen to my concerns and figure out if something major is going on besides the Wegs. I like my rheumy, but she's over an hour away and I just haven't felt the concern from her over these latest urine tests. I know my body well enough to know when something just isn't right, and my primary care doctor will usually investigate something every which way he can until he figures it out.
Teri from Texas
Diagnosed w/WG March 2015
"Lord my God, I called to you for help, and you healed me." - Psalm 30:2
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