User Tag List

Likes Likes:  0
Page 1 of 2 12 LastLast
Results 1 to 10 of 14

Thread: Finally Going to CC! :)

  1. #1
    Join Date
    Feb 2013
    Location
    Columbus, Ohio
    Posts
    308
    Post Thanks / Like
    Mentioned
    1 Post(s)
    Tagged
    0 Thread(s)

    Default Finally Going to CC! :)

    I just scheduled an appointment with Dr. Langford! I know, it took me long enough... I've been doing well, so I decided to try to go back to school this semester. I hadn't had a flare in about a year and was down to 22mg of pred and really thought my health was on track. Well, of course that didn't happen. I flared and started Rituxan the end of August, right when classes were starting. Even going through a flare, I thought I could focus on my health and balance school and work, but I was totally wrong. Trying to focus on anything school related on 50mg of pred was impossible. I bombed the first exam and being on so much pred made a rash decision and dropped the class. I absolutely regret doing that, but I guess now I can be proactive in managing my health. Hopefully, we can come up with a plan where I can get below 20mg of pred without flaring. I just want my health in a good place so I can take the pre-reqs and eventually get through grad school.


    My doctor said she would get in touch with Dr. Langford for a consult, but I figured since I'm so close it would be a good idea for me to just go up to Cleveland. Can anyone tell me what to expect? Is it an all day appointment, or since I have blood work and tests done regularly will she just go based off of everything in my medical record? I'm nervous but excited for this appointment.
    Nothing can break you; you are much stronger than you think... look at what you've already survived.

  2. #2
    Join Date
    Mar 2012
    Location
    Suburban Columbus, Ohio, USA
    Posts
    2,371
    Post Thanks / Like
    Mentioned
    20 Post(s)
    Tagged
    0 Thread(s)

    Default

    When I first saw Dr Villa Forte, I spent almost two hours with her providing a detailed health history and full details about my wegs experience. Gave her a urine sample during the appointment which she personally analyzed. At the end of the appointment, she sent me downstairs for blood work (c- and p-ANCA, sed rate, etc.). I was at the clinic for about three hours.

    You should get parking info as part of your pre-appt package. Driving time from c-bus is about 2:15. I usually allow 2:30-2:45 driving time.

    The clinic has MyChart, so you should sign up for it while you're there.

    Hope you have an excellent experience.
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

  3. #3
    Join Date
    Dec 2010
    Location
    Melbourne, Australia
    Posts
    2,751
    Post Thanks / Like
    Mentioned
    12 Post(s)
    Tagged
    0 Thread(s)

    Default

    Yes, it's about time.

    I'm looking forward to hearing of great results from you
    Keep Smiling
    Michelle


    Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS

  4. #4
    Join Date
    Nov 2011
    Location
    Ohio
    Posts
    1,970
    Post Thanks / Like
    Mentioned
    1 Post(s)
    Tagged
    0 Thread(s)

    Default

    Glad to hear you are finally going. You will love Dr. Langford. She is very professional. You will spend at least a couple of hours with her. I don't know if she will send you for bloodwork or not. Since you have your copies she may not. What day are you going up there ? I have an apt with her Oct.21 at 1:00
    Life isn't about how you survive the storm, but how to dance in the rain !

  5. #5
    Join Date
    Feb 2013
    Location
    Columbus, Ohio
    Posts
    308
    Post Thanks / Like
    Mentioned
    1 Post(s)
    Tagged
    0 Thread(s)

    Default

    I have my appointment on November 18th! I thought for sure she would have been booked for a few months, but I'm glad I can see her soon. I wish it was the same day as you, Debra - it would have been great to have met up with you!
    Nothing can break you; you are much stronger than you think... look at what you've already survived.

  6. #6
    Join Date
    Nov 2011
    Location
    Ohio
    Posts
    1,970
    Post Thanks / Like
    Mentioned
    1 Post(s)
    Tagged
    0 Thread(s)

    Default

    They also have a cancellation list that you can ask to be put on.
    Life isn't about how you survive the storm, but how to dance in the rain !

  7. #7
    Join Date
    Oct 2010
    Location
    Ohio
    Posts
    819
    Post Thanks / Like
    Mentioned
    3 Post(s)
    Tagged
    0 Thread(s)

    Default

    Rebekah,
    I am glad that you got into Dr. Langford. I wish you all the best in getting the Wegs back in control. I agree with Pete and Deb about the length of your appt., according to whether she will want her own blood work or maybe a CT scan. You might want to start writing down your history in your own words. They ask so many questions and it is good to have notes to look at and remind yourself, so you don't leave things out. I am wishing you all the best with a plan to reduce the preds and put the Weg's dog at rest. I will be up there on Nov 17th to see Neuro and Vascular doctors, I wish it were the 18th, I could have met up with you. I'll be up there on Tues, the 29th of Sept. to Gastro, if anyone is up there then.
    Jana


    Do not fear anything, just do it afraid!
    It does not matter how slowly you go, as long as you do not stop!


  8. #8
    Join Date
    Feb 2013
    Location
    Columbus, Ohio
    Posts
    308
    Post Thanks / Like
    Mentioned
    1 Post(s)
    Tagged
    0 Thread(s)

    Default

    That stinks that I'll just miss you. But that's a great idea to go to the appointment with everything written down! I better start now... I don't think I can remember everything that's happened. Thankfully, my rheumy's notes seem to be very thorough so that should really help Dr. Langford. I hope your upcoming appointments go well!
    Nothing can break you; you are much stronger than you think... look at what you've already survived.

  9. #9
    Join Date
    Apr 2011
    Location
    Olympia, Washington
    Posts
    6,992
    Post Thanks / Like
    Mentioned
    24 Post(s)
    Tagged
    0 Thread(s)

    Default

    Congrats on the appointment, Rebekah!
    Anne, dx'ed April 2011

  10. #10
    Join Date
    Dec 2013
    Location
    india
    Posts
    39
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Hi guys...on d blog afyr a lonng tym. .I really need ur help n support guys. ..in feb ds yr I ws hosp in icu fr 105.6 feverbof unknown origin...nw agn last mnth I gt admit..my ophtgal ref me to a reputed rheumy out here in india fr eye scleritis...he lut me on methotrexate. .wd dat my luver enzymes elevated n he put it on hold...my disease aggravated by dt tym n scleritis went onto necrotizing scleritis. .sclera melted out choroid n retina detached..lost my vision..nw devlpd infctn in dt..planning fr removing the eyeball dts wt drs say option wice...due to uncertainty of infect in eye dey still dint put me on immunosuppressive .meanwhil I strtd gtng pain in nose aroubd bridge..gt pns ct dne..put on host of antibiotics. ..nw d pain goes onto ears n throat..stil drs cdnt figur out wat was it. ..lung ctcshws nodules. .nw put on cytoxan but still d drug dsnt seem to hrlp..pain is excruciating. .m helpless totally owing to pain..dr wants me to tk rituximab but m scared of losing my lyf to it..read a lot of articles dt way...pl help

Page 1 of 2 12 LastLast

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •