User Tag List

Likes Likes:  0
Page 3 of 4 FirstFirst 1234 LastLast
Results 21 to 30 of 33

Thread: Took some prednisone today...

  1. #21
    Join Date
    Mar 2011
    Location
    canada
    Posts
    1,154
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Some very fun news...it has gotten much worse since this picture. One idiot Doctor is somewhat to blame. Also these ulcers sometimes just get worse rather than better. I now have a wound care doctor so this is good. I see my weg Doctor again in May and he said if it is not better by then we will look at immune suppressing drugs. It has gotten worse since then. Yippee. The wound doctor gave me a prescription for the nerve pain thank God. Now it just hurts a lot but I no longer feel lik I am being electrocuted every 3 seconds. I am now at a comfortable 7 out of 10 on the pain scale!
    lightning crashes
    leigh

  2. #22
    Join Date
    Apr 2011
    Location
    Olympia, Washington
    Posts
    6,992
    Post Thanks / Like
    Mentioned
    24 Post(s)
    Tagged
    0 Thread(s)

    Default

    Thanks for sharing, Leigh, and I'm dismayed that it has gotten much worse. Waiting until May? I don't understand why they don't treat it more aggressively now. I'm glad you at least have a special wound care doctor and something for the nerve pain. But I don't understand why they'd be dragging their feet on this. You'll be in my thoughts, and please keep us posted.
    Anne, dx'ed April 2011

  3. #23
    Join Date
    Apr 2013
    Location
    NH
    Posts
    1,393
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Leigh, good luck! It looks very painful... I'm with Anne here as to why he has you waiting until May? Nevertheless, good luck again... Debra...
    Live,love,and laugh...

  4. #24
    Join Date
    Mar 2011
    Location
    canada
    Posts
    1,154
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    I now have three doctors on it. One useless one. One amazing one and then my wegs Doctor will see me in May. I have the option of seeing him sooner if needed.
    lightning crashes
    leigh

  5. #25
    Join Date
    Mar 2012
    Location
    Suburban Columbus, Ohio, USA
    Posts
    2,371
    Post Thanks / Like
    Mentioned
    20 Post(s)
    Tagged
    0 Thread(s)

    Default

    Try to get into your wegs doc ASAP. That wound looks really nasty! You owe it to yourself to get competent treatment for it!
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

  6. #26
    Join Date
    Apr 2011
    Location
    Olympia, Washington
    Posts
    6,992
    Post Thanks / Like
    Mentioned
    24 Post(s)
    Tagged
    0 Thread(s)

    Default

    I'm glad you have an amazing doc working on it and can see your WG doc sooner than May if need be!
    Anne, dx'ed April 2011

  7. #27
    Join Date
    Apr 2013
    Location
    NH
    Posts
    1,393
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Hey, Leigh, I think you're useless doctor,moon lights up here? Haha... I think he's got lots of similar friends too, and they all work up here... Leigh, good luck, and I hope you get in a lot sooner! Debra...
    Live,love,and laugh...

  8. #28
    Join Date
    Feb 2013
    Location
    Israel
    Posts
    4,160
    Post Thanks / Like
    Mentioned
    36 Post(s)
    Tagged
    0 Thread(s)

    Default

    Hi. I am sorry.. after our last chat on fb I hoped that you are recovering.. I think its time for serious treatment. Maybe also biopsy ??
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

  9. #29
    Join Date
    Mar 2011
    Location
    canada
    Posts
    1,154
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Quote Originally Posted by Alysia View Post
    Hi. I am sorry.. after our last chat on fb I hoped that you are recovering.. I think its time for serious treatment. Maybe also biopsy ??
    He biopsied it today. Took out four pieces. We shall see. Much like biopsies for wg ones for pyoderma are often inconclusive.
    lightning crashes
    leigh

  10. #30
    Join Date
    Mar 2011
    Location
    canada
    Posts
    1,154
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    As much as I appreciate the likes on this one him cutting for chunks out of my ulcer was not pleasant!
    lightning crashes
    leigh

Page 3 of 4 FirstFirst 1234 LastLast

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •