News of The Pierre(42)

[Pierre42]

I may have the opportunity to be living-n-working in Sunny San Francisco (for a non-trivial period of time) before the year is out.



Pointers on GP/Hospital/Specialist and contact details would be appreciated.

I will be bugging my current (Australian) GP for some kind of medical braindump I can bring with me (ideally electronically).

[whatthewhat]

Stanford is very good. UCSF is good too. Best wishes; it's one of my favorite cities.

[annekat]

San Francisco is a lovely city. It isn't sunny all the time, but the fog usually burns off in the afternoon. The WG specialist at UCSF is the one mentioned the most often, Dr. Sharon Chung. See her on this link: Vasculitis Foundation » VF Medical Consultants There may be someone at Stanford mentioned there, too; unfortunately, it isn't alphabetical or by state. Here's another site to try, for docs recommended by patients, listed by location: http://www.vasculitispan.org/

[Jaha]

Congrats, and I'm wishing you all the best with the transition.

[TommyG]

Dr Sharon Chung at UCSF is a great Wegeners Doctor. I highly recommend her

[NikkiNicole]

Welcome to my side of the world if you come! Maybe we can grab lunch sometime. I would love to see Dr. Chung at UCSF but I haven't reached a level of needing her yet. I guess that's a good thing. My rheumy is great friends with her so I sort of get her input at a distance.
San Francisco is a lovely place. It can be yucky foggy but ... it also burns off sometimes too. Come a little north to my gorgeous neck of the woods, Sonoma County, Wine Country ... location of the fantastic Bodega Bay and gorgeous North Coast of Jenner, Timber Cove, Fort Ross and The Sea Ranch.

[Pete]

I would love to see Dr. Chung at UCSF but I haven't reached a level of needing her yet.

After reading some of yhour other posts, I respectfully disagree. Your symptoms should not be "toughed out". Go see Dr. Chung and see what she says!! PLEASE!!!???

San Francisco is a lovely place. It can be yucky foggy but ... it also burns off sometimes too. Come a little north to my gorgeous neck of the woods, Sonoma County, Wine Country ... location of the fantastic Bodega Bay and gorgeous North Coast of Jenner, Timber Cove, Fort Ross and The Sea Ranch.

I spent a week at The Sea Ranch a few years ago and loved it. The drive north from Bodega Bay made me want to drive my Boxster out there sometime just to drive the PCH there. Also, some of the wineries in Mendocino County produce some really nice wines. I like Navarro and (the old) Lazy Creek.

[Dirty Don]

"I would love to see Dr. Chung at UCSF but I haven't reached a level of needing her yet."

RU kidding me Nik??? You're past that level...have you looked back & read any of your 'desperate' posts? Don't mean to be mean, but 'proactive' has not been seen on this blog yet...you need some definitive support, and if Chung offers that, then it's better than what you've been doing. Best to you as always.

[MikeG-2012]

Nikki: I agree with Pete and Don, you need to get to a specialist IMMEDIATELY, if not sooner. All of the symptoms that are from this disease are cumulative; meaning that once you've went past a point and toughed it out, it may never get better past that point again. Had I not continued to tough out my last flare-up, I would probably not have permanent scar tissue in my lungs. The damage was done by the time I convinced my rheumy that I had active disease in my sinuses (which the ENT had been telling him for two months).

So STOP TOUGHING IT OUT!! GO get help now.

(Pseudo-Dad mode turned off now)

We all want you to feel better girl! YOU DESERVE IT!!

[Birdie]

It can be yucky foggy but

Oh man I love the fog in SF. The temp drops a bit and you get just a slight breeze that brings in fresh sea air. I hear the bay has been cleaned up in the last 25 years. Restored waterfront and marsh lands. Must be even better than I remember. On top of all the natural beauty it's also a beautiful city.