Hi Cindy,
Can you get another doctor on your own, or are you stuck with this one? Some of the Aussies will likely chime in soon with suggestions.
The ANCA tests are not sufficient for diagnosis. The most accurate diagnostic is a biopsy of the affected tissues to see if granulomas are present. This is an invasive procedure that usually requires general anesthesia. Symptoms can also provide clues.
The best advice I can give you is to find a doctor who has experience treating Vasculitis (wegs is one of over a dozen forms of it) and follow his/her treatment plan. I doubt that your doctor has much experience treating Vasculitis (and you should ask).
Good luck, and let us know how you're doing!!
Last edited by Pete; 09-07-2015 at 03:54 AM.
Reason: Added "treating Vasculitis"
Pete
dx 1/11
"Every day is a good day. Some are better than others." - unknown
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