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Thread: Tracheostomy reversal

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  1. #1
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    Victor,you and I seem to be the unlucky ones.Subglottic Stenosis and Trach tubes.I have had my tube since 11/88 when my GPA diagnosis was made.Only two docs in that time pondered the idea of reversal.In 1994 Dr.Bruce Pearson at the Mayo Clinic and later on Gayle Woodson,when she was at the teaching hospital I am going to now.I have been using a trachoe tube for many years,and like them the best.Boston Medical use to sell them,but not anymore.I don't mind the tube,but miss swimming.Good luck.Keith.
    "You can tame anything,except the human tongue"

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    Thanks and good luck to you as well I wish it was gone but at least I can breath!!

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    All the best to you Victor, that is a tough decision,but like you said he will know more after the first surgery,so you will have more to go one. Sorry about your moms health issue as well. You certainly have a lot on your plate now. Have you checked into that airbnb for a motel. I have looked into for other places but never used it ,maybe you might find something cheaper..........Good luck and let us know whats happening !
    Life isn't about how you survive the storm, but how to dance in the rain !

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    I have to confess a bit of ignorance here Vic, but very interested as this might be the path I'm going down now.

    Is the trach tube below your vocal cords and extend out your neck? Do you have to plug it to talk?

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    Best of luck to you, Victor and Keith, if you pursue this further, and you, too, vdub, if it becomes an issue, which I hope it doesn't!
    Anne, dx'ed April 2011

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    Victor, good luck from me as well... Wish you the best... Deb...
    Live,love,and laugh...

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    The trach is below my vocal cords. I speak better if I plug with my finger or a passy-muir valve or cap. The good news is there is no pain associated with the trach once it is established. Here is a photo of what it looks like. Best of luck to you
    Trach.jpg

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    Blue, I never know what to call you! And this rhymed also... Just wanted to thank you, for this photo! Really kind of you, to share this with everyone... Good for you! I wish you the best also... Victor, again, best to you... Debra...
    Live,love,and laugh...

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