Morning annekat, and all
My oncologist said he considered the possibility but explained the insurance! The RA that I saw the year before for swollen ankles and joints.
Since the swelling had gone down by the time I got in to see him, he left me with an open appointment which I used when I flared!
He told me also that this is why he was reluctant to treat me for rheumatoid arthritis and in part due to my cancer history and the drugs to treat RA could be toxic to me!
He was sure when I got the purpura and was apologetic but I told him that it was all good and I was ready to move on with treatment!
I went nearly 5 years making complaints of ailments and was ready to give up because I started to wonder if it was all in my head!
All I wanted was a name for what was ailing me, give me something to make it better and I will go away!
This vasculitis is a terrible thing to get because its so stealthy and hard to pin point!
By the time they did my kidney biopsy, and the lungs were in distress already, I lost nearly all my lung function within 2 weeks while waiting for results and then another week to determine my treatment!
Sinus' are still giving me fits, but he COPD I'm is the most of my problems. I am in remission as far as I know but the lungs are progressively getting worse and there is no stopping the progression but I can slow it I think by doing what I'm supposed to!
I really wish there was a marker for vasculitis! I wish the insurance companies at the time wasn't so determined to decide what test I can have and not have when there is a need to eliminate other issues!
Nobody knows how we got to the top of the hill. But since were on the way down, we might as well enjoy the ride!
James Taylor, Secret Of Life
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