I'm late getting into this too because I was unable to get in to the forum for a while.
NIKKI: YOU I STRONGLY BELIEVE THAT YOU HAVE ACTIVE DISEASE, AND NEED HELP NOW!!
When my sinuses were that bad, I had the same symptoms as you--uncontrollable pain that I was taking three different pain pills for different levels of the headaches. My rheumy kept telling me that it couldn't be active disease, until my ENT dragged him into his office and showed him the video of my sinuses. The were "raw and angry" and "Looked like hamburger" according to the ENT.
GET HELP NOW!!! Don't leave until you get massive help, and they take you seriously. If they don't, GO SOMEWHERE ELSE where you can get proper treatment.
I'll get down from the podium now...
Mike
MikeG-2012
"You never know how strong you are until being strong is the only choice you have"
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