The Vasculitis Clinical Research Consortium and the Vasculitis Foundation are excited to introduce the Vasculitis Patient-Powered Research Network (V-PPRN)!

The V-PPRN launched in November 2014 to patients in the United States. The V-PPRN is now expanding internationally and is enrolling patients outside of the United States.

The V-PPRN is a research network with the ability to collect and securely store patients' disease experiences, known as patient-reported data to build robust data for vasculitis research.

We are enrolling patients with vasculitis, parents of a child with vasculitis, and caregivers of adult patients with vasculitis. The V-PPRN is studying the following forms of vasculitis:
Behçet's disease Henoch-Schonlein purpura (IgA vasculitis)
Central nervous system vasculitis Microscopic polyangiitis
Cryoglobulinemic vasculitis Polyarteritis nodosa
Eosinophilic granulomatosis with polyangiitis (Churg Strauss syndrome) Takayasu's arteritis
Giant cell arteritis Urticarial vasculitis
Granulomatosis with polyangiitis (Wegener's) Other forms of vasculitis

The V-PPRN is a whole new way of finding answers for the questions most important to YOU and other patients living with vasculitis.

We hope you will join us in creating a new vision for vasculitis research by becoming a vasculitis visionary and powering the V-PPRN!

Here is how to join:

  1. Follow this link: www.vpprn.org/webapp/views/consent
  2. After you register, answer questions about yourself to complete your MyV-PPRN patient profile.
  3. Check in regularly and make sure your information is up-to-date.