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Thread: Intestinal Bleed

  1. #1
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    Default Intestinal Bleed

    Hi All: I've been out of commission for a while. I woke up one morning to go to work and noticed blood in my stool. Fearing the worst I rushed off to emergency. Internal bleeding was a big problem with my first bout of WG in 2008 and I was thinking a major flare. The Doctors were great, the rheumatologists on staff checked out all areas for any signs of WG, they did a chest x-ray which looked the same as my last one in 2010 and were 99% certain I wasn't having a flare. The GI doctors did a colon ostomy, and a scope of my stomach and upper part of the small intestine but could not find anything. They then did a CT scan of the small intestine and found a dark spot. I was rushed off to surgery. They do a scope thru a vein in the groin to the spot but when they got there the vein they thought was bleeding was ok. Next, I was sent to a GI specialist who does a deep scope that goes farther into your small intestine, by this time the bleeding had stopped. He did not want to do the deep scope because I have had so many intestinal operations (6), there is stitching and scaring and he felt the scope might end up doing more harm than good. I was then scheduled for a camera endoscopy. You swallow a pill with a camera in it and it takes pictures as it goes through your system. Like the colon ostomy, the prep it the worst part of the procedure. You have to drink the same terrible tasting liquid to clean out your system. This was done last week end, I haven't heard anything back yet, I'm hopeful that is good news. I would think (hope) that they would contact me right away if they found anything major.

    I'm back at work,feeling good and am glad it wasn't the Wegner's. I was not looking forward to going back on to all that medication again. Just thought I would share this experience in case it should happen to any of you.

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    Quote Originally Posted by Randy View Post
    You swallow a pill with a camera in it and it takes pictures as it goes through your system.
    I formally request no posting of pictures without a warning in the title.

    Sure is good to hear such a positive outcome.

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    Wow Randy, you get some crazy, scary symptoms.

    I wonder what the bleed could have been from - curious actually.
    You are correct though, that they would definitely contact you, and get you back into hospital, if it was anything serious.

    Keep us posted
    Keep Smiling
    Michelle


    Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS

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    Hi. I am sorry for the tough time you have being through and glad that you are doing better.
    I have colon involvement of wg. When its wg activity (flaring or smoldering) in the colon there will always be, at least for me, more symptoms like joints pains, nose bleeding, coughing, ear pains etc. Never only one area. My colon is never normal and I cant eat lots of things, outherwise I get crazy diarhea. When there are issues only of the colon its prob a virus or eating something that I shouldnt eat. Food must be totally "clean".
    Please update us about the results.
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

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    I don't think I want to see the pictures either.

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    I have the same problems, especially restaurant food.

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    Quote Originally Posted by Randy View Post
    I don't think I want to see the pictures either.
    Actually, kidding aside there is a documentary about that procedure. A reporter swallowed the camera and went through the process. The pictures were very high quality and very interesting.

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    Yes, I got to watch excellent TV on both the computer & a wall TV of my sinuses and the hamburger WG created in there. Mmmmm, not an Emmy award for the ENT...but was interesting while weird at the same time...that's tooooo close to my dinosaur brain to be watching...yuk...reminds me of when some peeps on here went 'booger pic' crazy! Again, yuk...
    Knowing how to think empowers you far beyond those who only know what to think. -NdT


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    Quote Originally Posted by Dirty Don View Post
    Yes, I got to watch excellent TV on both the computer & a wall TV of my sinuses and the hamburger WG created in there. Mmmmm, not an Emmy award for the ENT...but was interesting while weird at the same time...that's tooooo close to my dinosaur brain to be watching...yuk...reminds me of when some peeps on here went 'booger pic' crazy! Again, yuk...
    One of the best threads....
    http://www.wegeners-granulomatosis.c...afe-lunch.html
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

  10. #10
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    Quote Originally Posted by Birdie View Post
    I formally request no posting of pictures without a warning in the title.

    Sure is good to hear such a positive outcome.
    Just see the link in my last post above.
    Especially Phil's star fish. A masterpiece.
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

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