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Thread: What does Cleveland Clinic provide that local doctors do not?

  1. #21
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    I signed the release forms and Mayo got a lot of my records from other places. At my first visit though they gave me back several hundred pages of info they had received. I gather they either scanned them or took the info they felt necessary and returned all the papers to me.
    Knowledge is power! Wisdom is using it to make good decisions!

  2. #22
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    YES YES YES by all means go see them .. they are the top hospital in the world that deals with WG. If they don't know they will find someone who does.. You will get the best treatment there .. please make an apt and talk to them. Just try. You will be surprised.

  3. #23
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    I wanted to give an update on my visit. It was 100% worth the time and money. Dr. Villa Forte is so knowledgeable about this disease and it was clear how much of a difference that knowledge makes. She made a few changes to my current plan. For example, my docs have me doing blood work every 3 months and she said once a month is better, especially since I have kidney involvement. She thinks I might have a small flare at the moment, which my doctors were treating more as a sinus infection. I have an ok team in place but they are all specialists in their general areas--kidney, eye, ear--but don't have a good whole systems approach which she seems to have. I am really glad I went to see her.

  4. #24
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    Quote Originally Posted by csjknits View Post
    I wanted to give an update on my visit. It was 100% worth the time and money. Dr. Villa Forte is so knowledgeable about this disease and it was clear how much of a difference that knowledge makes. She made a few changes to my current plan. For example, my docs have me doing blood work every 3 months and she said once a month is better, especially since I have kidney involvement. She thinks I might have a small flare at the moment, which my doctors were treating more as a sinus infection. I have an ok team in place but they are all specialists in their general areas--kidney, eye, ear--but don't have a good whole systems approach which she seems to have. I am really glad I went to see her.
    i guess you found the answer to your question----experience and expertise. Glad you went!
    Knowledge is power! Wisdom is using it to make good decisions!

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