When my daughter was diagnosed at age 24, I was told this is mostly a "middle age" disease. It was clear to me after doing considerable research that she had WG long before she was diagnosed- she was just always misdiagnosed. I am now hearing more and more instances as with your daughter, Allyson, of an earlier diagnosis. While no one obviously wants this diagnosis, it is good that perhaps the medical community is becoming more educated and knowledgeable about WG, its varied symptoms and the early onset (for many).
As a parent , I know how frightening this can be. It is also a helpless feeling as we cannot protect our children or put a band-aid on and make everything better. This forum has helped me so much- just reading the posts and the advice.
Stay positive. The best to you and Allyson.