For some local info you could check out the links at Vasculitis UK - The UK's Leading Vasculitis Charity they seem to be quite active.
This charity seems to organize a lot of stuff, I think they also have a cabin you can use for free: The Lauren Currie Twilight Foundation
gilders is from the UK, so maybe he could have some info about local groups. I know there are at least some 20-year olds in our local FB group, and have heard that many were diagnosed when they were in your age.
Diagnosed 08/2013, Relapse 07/2014, Relapse 5/2017 (although early signs of it from 12/2016)
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