For me, the nausea with CTX was very slight and I got used to it within a couple of weeks. I was on the same amount you are on. It is a heavy hitter and usually works well to stop the progress of the disease and allow symptoms to clear up. I don't know, though, with all those organs that you have involvement in, whether you are getting a high enough dose of either that or prednisone.... not clear how long you've been under treatment, but guessing March 2015? There is a formula for dosage of CTX by weight... according to it, I should have been on 125mg, but I did well on 100mg. Sorry, don't have the formula at hand. Not that you'd want to take more if you are having problems with it. Maybe you need another opinion or a consult by your doc with top experts at this site:
VF Medical Consultants , or check this one, too, for additional docs in your area as recommended by patients:
Vasculitis Journey of Hope . Rituxan is another heavy hitting med that may be recommended for you instead of CTX, though the process of getting it approved and administered is much more involved.
As for hair loss, yes, I had it, but not to the point of losing it all or having anyone really notice. I've heard of taking folic acid with MTX for hair loss and other issues involved with the med, but not in connection with hair loss from CTX. I don't know that it wouldn't work, and it wouldn't hurt. Folic acid is cheap and readily available OTC. Best of luck, and keep us posted.
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