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Yes I will let you know after my appointment. I did some looking back on my own blood test over the last six months and noticed my sed rate has been high for the whole time. Just alittle higher then normal, after reading up alittle it could be just the wegs flaring up, a lot of people seem to think I need to up my pred.
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My SED rate has been consistently up from dx (as high as 148 at dx, now runs mid-50's). Yes SED rate is a non specific marker of inflammation but has been shown in my case to show when I'm starting to flare up. While I have never been in remission (dx'd July 2013), my SED rate jumped from mid-50s to mid 80's when I had a new nodule growing in my lung. I have heard SED rate is not typically used to determine tx options it has helped both my Cleveland doc and local doc determine when to start a round of Rituxan again. I am currently taking 150 of aza, 5 mg of pred daily. I just finished 4 weekly doses of Rituxan.
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