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Thread: Bleh

  1. #11
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    Bob, I know from personal experience how the stress of work can contribute to flares. I'm glad you are doing brainless activities during your time off, if that is what feels comfortable and stress-relieving. I hope you can get this sorted out soon and back on an even keel.
    Anne, dx'ed April 2011

  2. #12
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    Thanks for you concern folks
    ~ Bob

  3. #13
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    Spent today at CC. I'm going to be set up for RTX infusions. They are now only doing 4 insusions 1 week apart as opposed to the previous times I did 2 2 weeks apart. I guess that Medicare demanded the change and all the insurers followed suit, even though the cost is actually higher. Weirdos.
    ~ Bob

  4. #14
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    Hope they make you better!!
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

  5. #15
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    Best wishes for successful treatment, Bob! I so envy you people who live in Ohio. Except for the winters and maybe the summer humidity....
    Anne, dx'ed April 2011

  6. #16
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    Winters do suck.
    ~ Bob

  7. #17
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    Praying for you. get well soon.
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

  8. #18
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    Thanks Alysia, still praying for you as well.

    CT Scan set for tomorrow morning. No idea how long I'll be waiting for the insurance to approve the RTX.

    Couple things that i forgot after my CC run. They are now doing more RTX with just Prednisone in between. Previous times they didn't take me off of my other meds, this time they are taking me off Cellcept, which is a bit disappointing.

    She listened to my chest when I mentioned the pain, and she thought the opposite side sounded "Moist". Weird because now I feel like somehting over there might be going on, hopefully that is just in my head
    ~ Bob

  9. #19
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    We will all be waiting to hear the results of your CT scan, so be sure to let us know as soon as you know!
    Anne, dx'ed April 2011

  10. #20
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    Bob ,sorry to hear you had an unexpected anniversary "gift" Hopefully it won't take to long for the ins to approve the rtx. I was wondering what a "moist" chest sounds like !! Like Anne said let us know the ct results..hope all is well there.
    And a note for allergy sufferers, I learned from this girl when I was in Fl. that her dr. told her to get honey that was made from a 25-50 mile radius.And take a few teaspoons a day. I guess it works kinda like a vaccine ,since you are ingesting the same pollen that is in the air around you ??!! It helped her,they sell it at most health food stores.
    Life isn't about how you survive the storm, but how to dance in the rain !

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