Rituximab

[JanW]

I know that when I posted the name of my surgeon I was greatly comforted to see someone come on and say that they had the same exact surgery 3 or 4 times with him. I can certainly understand when people think info is too personal (I'm sure some here use their real names and some not), but just putting it out there that to us newly diagnosed, actually be able to 'vet' a doctor through a patient who has had WG for longer is incredibly helpful.

[elephant]

I am thankful that everyone here has put names of doctors on here. My rheumatologist got a hold of Carol Langford first and then when I saw her name mentioned on this forum...I knew she was good. It is so important that we communicate like this because are disease is so rare. The nurse's who took care of me today had to look up Wegeners disease and asked a lot of questions. I thought that was great.

[moyan]

So nice to see you El. Do you have a laptop at hospital or are you home already? Whatever case, I wish you a fast recovery and less trouble than before.

[elephant]

I got home from the hospital around 10am. Feeling better today. Yesterday kinda freaked me out. I felt like Linda Blair from the movie "Exorcist"! Never really watched the whole movie...a nurse told me I looked like her when I was 16 yrs old.

[Sangye]

Good timing for a nurse to say you resembled Linda Blair!