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Hello my name is rudder and I have had GPA since 1991.
I have not been on a forum like this for a long-time. My disease has been controlled with Methotrexate since 2001 and I feel very lucky.
I had the standard treatments in 1991 with oral Cytoxan and Predisone for 2 years or so but had a flare after that and took Cytoxan intervieniously for +2 years monthly at first and then every other month after that with some Predisone as well. In 2001 I had a major flare and was put on Methotrexate and have been taking 7 - 2.5 tablets every since, once a week.
I do have some chronic kidney issues and controlled high blood pressure but not bad, so my life has been good. I am back on this forum because the Methotrexate has caused me to become anemic and my Doctors are thinking about changing my meds to Rituximab and I wondered if anybody on the forum has taken that drug and what the results have.
My Doctors have lowered my Methotrexate dose to 6 - 2.5 tablets per week. I am going to have another option with a different Doctor in a few weeks so I will now more then.
So if anyone knows someone who has/or is taking Rituximab for GPA; I would appreciate any information regarding the drug.
Thanks, rudder.
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