I know this is a rare disease, but wondering if it is getting better known so more getting dx correctly. My neighbor at our lake place husband passed from WG's due to kidneys. My neighbor her in Naples has a nephew with WG's now 27 doing pretty well. The eye doc's assistant's best friend has it and her friends took time to learn about it.
I hadn't run into anyone in the passed 8 years that even heard of it and suddenly 3 people. I wonder if anyone out there has any idea of how many wegs are out there.
Mary
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