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Thread: Wegeners Granulomatosis / GPA specialists

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  1. #1
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    Default Wegeners Granulomatosis / GPA specialists

    I was going to set up a website/directory that would be a source of WG/GPA specialists. That's not going to happen any time soon so we'll use this thread to start to create the data that may eventually get used in the directory.

    So here's what I reckon. Copy/paste the template below and fill in the detail and post in this thread. This can be a source of information for all and I'll make the thread a 'sticky' and link to it from the front page.

    Note: this is information that you would normally respond with to a question regarding "what specialists are in my area" or something similar.

    NOTE: No contact information should be published at this stage. People can Google name and location.

    Go...

    //////////////////////////////////////////

    Specialist name:
    Location (Country/State/City):
    Area of specialisation (e.g. Rheumy, Immunologist etc):

    /////////////////////////////////////////
    Forum Administrator
    Diagnosed March 2003.
    Currently but not permanetly residing in Canberra, Australia.

  2. #2
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    Alexandra Villa Forte, MD
    Cleveland, Ohio, United States
    Rheumatologist specializing in vasculitis
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

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  4. #3
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    Dr Sami Mughni
    Spring Hill/Port Richey (2 offices), Florida
    Rheumatologist
    Has 11 WG patients including my son
    Saved my son's life by suspecting WG after he was in the hospital 2 days, a biopsy confirmed 4 days later.
    He is extremely involved and even texts us with info. Great doctor!!

  5. #4
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    Quote Originally Posted by Pete View Post
    Alexandra Villa Forte, MD
    Cleveland, Ohio, United States
    Rheumatologist specializing in vasculitis
    She is my GPA hero!

  6. #5
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    Default Re: Wegeners Granulomatosis / GPA specialists

    Hi Pete! Is Alexandra Brazilian? Just curiosity, maybe she know Dr, Bˇris who treats my GW.

  7. #6
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    Default Re: Wegeners Granulomatosis / GPA specialists

    @Eduardo I’m not sure
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

  8. #7
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    Default Re: Wegeners Granulomatosis / GPA specialists

    Ok, thanks!

  9. #8
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    Dr. James Davidson
    Monroe Clinic
    Monroe, WI USA
    Rheumatologist

    Dr. Anthony Rogerson
    Monroe Clinic
    Monroe, WI USA
    Otolaryngology/ENT

    Dr. Joshua Morrison

    Monroe Clinic
    Monroe, WI USA
    Neurologist
    MikeG-2012

    "You never know how strong you are until being strong is the only choice you have"


  10. #9
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    Specialist name: Dr. Joseph Lutt
    Location (Country/State/City): USA/Colorado/Boulder
    Area of specialisation: Rheumatologist

  11. #10
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    Specialist name: Dr Curry Koening
    Location (Country/State/City): University of Utah, Health Center, Salt Lake City, Utah
    Area of specialisation (e.g. Rheumy, Immunologist etc): Rheumatology/Vasculits
    Web site: U of U Vasculitis Center
    Wegener's (​GPA )- dx Apr10, Granulomatous Hypophysitis - dx Apr10, Diaphragmatic Paralysis - dx Feb16, Bradycardia - dx Dec16. (my story)
    Forum Member Map -- world map for you to put a stickpin of where you are located....

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