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Thread: Wegeners Granulomatosis / GPA specialists

  1. #11
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    If we get enough of these, we could put them on a map like the member map. I haven't looked into it, but I would think there is a way to load a list of data points.
    Wegener's (​GPA )- dx Apr10, Granulomatous Hypophysitis - dx Apr10, Diaphragmatic Paralysis - dx Feb16, Bradycardia - dx Dec16. (my story)
    Forum Member Map -- world map for you to put a stickpin of where you are located....

  2. #12
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    Quote Originally Posted by vdub View Post
    If we get enough of these, we could put them on a map like the member map. I haven't looked into it, but I would think there is a way to load a list of data points.
    Great idea!!
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

  3. #13
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    Quote Originally Posted by vdub View Post
    If we get enough of these, we could put them on a map like the member map. I haven't looked into it, but I would think there is a way to load a list of data points.
    Yes! And that would save me making a new website too!
    Forum Administrator
    Diagnosed March 2003.
    Currently but not permanetly residing in Canberra, Australia.

  4. #14
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    FN van Zyl
    Pretoria, South Africa
    Rheumatologist

  5. #15
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    Quote Originally Posted by andrew View Post
    Yes! And that would save me making a new website too!
    (tongue in cheek) But what would you do with all that extra spare time? That's what people think web development is, right? Whip out a new site in a weekend and it's DONE--NOT!!

    Map is a good idea if we can get the appropriate info to pop up when hovered upon!
    MikeG-2012

    "You never know how strong you are until being strong is the only choice you have"


  6. #16
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    Here is a practice and my doctor:

    Nephrology Associates of Northern Virginia, Inc. is led by Dr. Ali Assefi and has a staff of 9 nephrologists who all have worked with GPA patients.
    I'm working with Dr. Franco Musio MD, FACP, FASN who specializes in nephrology (kidney issues) and has experience with multiple GPA patients.
    Fairfax, VA 22033

  7. #17
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    Specialist name: Dr. Rebecca Manno at Johns Hopkins Vasculitis Center
    Location (Country/State/City): Baltimore, MD 21029
    Area of specialisation (e.g. Rheumy, Immunologist etc): Rheumatologist who specializes in GPA.

  8. #18
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    Specialist name: /Dr. Antoine Sreih
    Location (Country/State/City): University of PENN
    Area of specialisation: Rheumatologist, Vasculitis

  9. #19
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    Specialist name: Dr. Kenneth Warrington at Mayo Clinic
    Location (Country/State/City): Rochester, MN 55902

    Area of specialisation (e.g. Rheumy, Immunologist etc): Rheumatologist
    Greg
    Diagnosed July 23, 1999

  10. #20
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    Quote Originally Posted by Gragnoc View Post
    Specialist name: Dr. Kenneth Warrington at Mayo Clinic
    Location (Country/State/City): Rochester, MN 55902

    Area of specialisation (e.g. Rheumy, Immunologist etc): Rheumatologist
    There are many other listed GPA specialists at Mayo. I see Ulrich Specks in Pulmonary department who does a lot of research in this field.
    Knowledge is power! Wisdom is using it to make good decisions!

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