Wegeners Granulomatosis / GPA specialists

[erincollard]

Until aged out, saw Dr. Melissa Cadnapaphornchai, Childrens Hospital Kidney Clinic.

[jmq]

Specialist name: Dr. Athan Tiliakos, Emory Clinic, Emory Hospital
Location (Country/State/City): United States / Georgia / Atlanta
Area of specialisation (e.g. Rheumy, Immunologist etc): Rheumatologist, Vasculitis

Specialist name: Dr. Alexandra Villa Forte, Cleveland Clinic, Vasculitis
Location (Country/State/City): United States / Ohio / Cleveland
Area of specialisation (e.g. Rheumy, Immunologist etc): Rheumatologist

[little sister]

Any GPA docs that are nephrologists? My experience is that division of rheumatology doesn't treat you if your kidneys become involved.

[drz]

Any GPA docs that are nephrologists? My experience is that division of rheumatology doesn't treat you if your kidneys become involved.

My experience was having several specialists that all made recommendations to the one doctor who weighed and balanced the recommendations and made the final orders for treatment. They often conflicted since a treatment that might help one organ might be dangerous for another organ. My health care director consulted with this primary doctor to select what they thought was best option for treatment depending upon current status. One of the many specialists were nephrologists along with at least a half dozen others. They also consulted with several world known experts on how to treat my Wegener's GPA.

[AmyG]

Here's who I see.

John Niles, MD
Vasculitis and Glomerulonephritis Center at Massachusetts General Hospital, Boston, MA, USA
Nephrologist/Internist