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Thread: Wegeners Granulomatosis / GPA specialists

  1. #31
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    Default Re: Wegeners Granulomatosis / GPA specialists

    Until aged out, saw Dr. Melissa Cadnapaphornchai, Childrens Hospital Kidney Clinic.

  2. #32
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    Default Re: Wegeners Granulomatosis / GPA specialists

    Specialist name: Dr. Athan Tiliakos, Emory Clinic, Emory Hospital
    Location (Country/State/City): United States / Georgia / Atlanta
    Area of specialisation (e.g. Rheumy, Immunologist etc): Rheumatologist, Vasculitis

    Specialist name: Dr. Alexandra Villa Forte, Cleveland Clinic, Vasculitis
    Location (Country/State/City): United States / Ohio / Cleveland
    Area of specialisation (e.g. Rheumy, Immunologist etc): Rheumatologist

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  4. #33
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    Default Re: Wegeners Granulomatosis / GPA specialists

    Any GPA docs that are nephrologists? My experience is that division of rheumatology doesn't treat you if your kidneys become involved.

  5. #34
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    Default Re: Wegeners Granulomatosis / GPA specialists

    Quote Originally Posted by little sister View Post
    Any GPA docs that are nephrologists? My experience is that division of rheumatology doesn't treat you if your kidneys become involved.
    My experience was having several specialists that all made recommendations to the one doctor who weighed and balanced the recommendations and made the final orders for treatment. They often conflicted since a treatment that might help one organ might be dangerous for another organ. My health care director consulted with this primary doctor to select what they thought was best option for treatment depending upon current status. One of the many specialists were nephrologists along with at least a half dozen others. They also consulted with several world known experts on how to treat my Wegener's GPA.
    Knowledge is power! Wisdom is using it to make good decisions!

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