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Thread: Wegeners Granulomatosis / GPA specialists

  1. #21
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    Quote Originally Posted by drz View Post
    There are many other listed GPA specialists at Mayo. I see Ulrich Specks in Pulmonary department who does a lot of research in this field.
    I agree. The Mayo Clinic has GPA specialists in the Rheumatology, Pulmonary, and Nephrology Departsment. I am currently seeing Dr Kenneth Warrington.
    Greg
    Diagnosed July 23, 1999

  2. #22
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    Specialist name: Bóris Afonso Cruz,
    Location (Country/State/City): Brazil, Minas Gerais, Belo Horizonte
    Area of specialisation (e.g. Rheumy, Immunologist etc): Rheumatology, vaculitis.
    He saved my life after lately diagnosed. Loic Guillevin's student an closely friend. L. Guillevin is French rheumatologist, one of the first who studied and successfully treated GW.

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  4. #23
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    Quote Originally Posted by Pete View Post
    Alexandra Villa Forte, MD
    Cleveland, Ohio, United States
    Rheumatologist specializing in vasculitis
    She is my GPA hero!

  5. #24
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    Default Re: Wegeners Granulomatosis / GPA specialists

    Hi Pete! Is Alexandra Brazilian? Just curiosity, maybe she know Dr, Bóris who treats my GW.

  6. #25
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    Default Re: Wegeners Granulomatosis / GPA specialists

    @Eduardo I’m not sure
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

  7. #26
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    Default Re: Wegeners Granulomatosis / GPA specialists

    Ok, thanks!

  8. #27
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    Default Re: Wegeners Granulomatosis / GPA specialists

    Our daughter has been treated by several Pediatric rheumatologists. One I recommend without hesitation is Suhas Radhakrishna, who works out of Rady Children's Hospital in San Diego, CA. Also, I have a shorter history with but was completely impressed by Pediatric rheumatologist Dr. Caroline Chang who is in Honolulu HA

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  10. #28
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    Default Re: Wegeners Granulomatosis / GPA specialists

    Dr. John Cush,Rheumatologist, Dallas, TX. I have been seeing him for the past 11 years. He is great. He took over Dr. J Donald Smiley’s practice when he died...who I started seeing in 1982 when he diagnosed me. I have had WG for 37 years with 3 flares.


    Sent from my iPhone using Tapatalk

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  12. #29
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    Default Re: Wegeners Granulomatosis / GPA specialists

    Specialist name: Dr Pamela Freeman
    Location (Country/State/City): US, Orlando, FL
    Area of specialisation (e.g. Rheumy, Immunologist etc): Rheumatologist

  13. #30
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    Default Re: Wegeners Granulomatosis / GPA specialists

    Traveled from Denver to see Dr. Phillip Seo, Rheumatologst, at John Hopkins in Baltimore, MD
    Last edited by erincollard; 03-13-2019 at 07:48 AM.

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