Hi Victoria, Sorry your son is going through some tough times. That certainly makes things rough for you also.
Are you still on the MTX? Have you had a CT of your lungs and are they stabilized? The tingling in your hands could very well be carpal tunnel and there are tests that neurologist can to do to make that determination for sure. The stiffness and pain in your knee and leg sound like it could be a flare. Have a doc evaluate the leg pain as we are prone to blood clots more than the average Joe. Fatigue is definitely a symptom of this disease.
Are you seeing a good Rheumy that has experience with wegs? And a good Pulmonologist for the lungs?
Some observations: If your lungs had holes as big as the docs say then I'm surprised they didn't go with a stronger drug regimen like Rituxan or Cytoxan. They are both much stronger than Methotrexate. There is probably no change in the holes because they have cavitated or the sides have collapsed in toward the center and they may no longer be active which would also explain why they went with the MTX instead of the big guns.
Hope this helps in some small way and if you have any questions please feel free to ask. You might want to start your own thread under "general weg chat".
Cindy
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