Originally Posted by
Sangye
Since this thread is a Sticky, I want to return to the original topic. We've now lost another member of our group (CindyR's mom) to Wegs and/or its complications. She was being treated in the ICU by non-Wegs docs. CindyR contacted the Wegs doc's office for his input, only to be told the hospital docs had to request it.
When I was hospitalized at a local hospital with severe vertigo and hearing loss in July, the docs ignored my demands to call my Wegs docs. I finally called my Wegs ENT myself, who was horrified that they weren't treating the sudden hearing loss. He told me what treatment was required. I called the hospital doc in and demanded she call him immediately, that we were going to begin his treatment plan immediately. She was wishy-washy. I actually shouted at her.
I was in for several days and every single day this doctor was wishy-washy about my care. Every single day I had to demand that she call my Wegs doc to check in, and I called him myself to make sure she did. They messed up the treatment one day (gave me half as much pred as I needed) and when I found out the next day my Wegs doc was livid. I raised holy hell in that hospital for 6 straight days to make sure I got proper care. The result is that I preserved my hearing. I'd be completely deaf in one ear if I hadn't.
I write this because we have to take matters into our own hands with Wegs. If you want a Wegs doc to consult, you must demand it. Don't worry more about their feelings than about your health. Make sure your friends and family know to be demanding if you're unable to do it yourself.
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