Reality Check

[elephant]

I am enjoying my vacation with my kids...visiting my siblings. I was put on antibiotic ( Bactrim) for two weeks and it caused severe insomia...only getting 3-4 hours of sleep. I am off it starting today, but I take Bactrim one pill DS every other day. I still have post nasal drip, so I will keep an eye on that.
How is the prednisone going? Are you feeling better every day?

[Sangye]

Take it easy! I hope the sinus bug clears up quickly.

I'm doing okay with the pred. Still a little unsure if 2.25mg is enough or if I need to bump it up to 2.5mg. Today should be more clear.

[Lightwarrior]

I've learned that they don't have much sense of humour when they are caught making a **** up. Perhaps they are afraid of litigation?

Perhaps they should be, I am so sick of Doctors not putting the patient first, afraid of stepping on toes of other doctors. I've been doing a little toe stepping lately and I'm not done, best they put on steel tipped boots.

[Sangye]

I have a personal Zero Tolerance Policy for docs not putting my care ahead of their egos. Thankfully, I rarely have to enforce it anymore.

[elephant]

I learned to be persistant and if that doctor does not listen I will tell another and then dump that doctor. If I am super pissed the doctors will hear an earful...I don't swear...but the questions that I ask them...they are usually unable to answer and that is my point....meaning " I need this check out...blah, blah." Then of course they have too check it out, if they don't then they are in big doooo......dooooo.

[coffeelover]

[QUOTE=LisaMarie;18448]y do a wash to sample my bronch and I started having difficulty so she could not go further...turns out she totally occluded me when she shoved it thru...

When I was first going through all the testing procedures prior to my trach surgery. ONe of the doctors I had to work with was a pulminologist (young and cocky) and he did a bronchoscopy on me. I too was awake through the procedure and he too "shoved" it through so I could not breath at all. Although it was temprary and I was sorta out of it...THAT I do remember! He is no longer with the hospital I am working with. I wonder if there was a reason??? (sarcasm)

[freakyschizogirl]

It really is shocking the lack of care some Doctors have to Patients. Reading the original post Sangye i was shaking my head the whole way through. Its so typical of Healthcare in general, despite what country you're in.
So sad he didnt get the diagnosis that would've saved his life. Is thre no Doctor out there who goes outta their way for Patients?? Or just to think what if? And do a bit of research.

[Sangye]

Since this thread is a Sticky, I want to return to the original topic. We've now lost another member of our group (CindyR's mom) to Wegs and/or its complications. She was being treated in the ICU by non-Wegs docs. CindyR contacted the Wegs doc's office for his input, only to be told the hospital docs had to request it.

When I was hospitalized at a local hospital with severe vertigo and hearing loss in July, the docs ignored my demands to call my Wegs docs. I finally called my Wegs ENT myself, who was horrified that they weren't treating the sudden hearing loss. He told me what treatment was required. I called the hospital doc in and demanded she call him immediately, that we were going to begin his treatment plan immediately. She was wishy-washy. I actually shouted at her.

I was in for several days and every single day this doctor was wishy-washy about my care. Every single day I had to demand that she call my Wegs doc to check in, and I called him myself to make sure she did. They messed up the treatment one day (gave me half as much pred as I needed) and when I found out the next day my Wegs doc was livid. I raised holy hell in that hospital for 6 straight days to make sure I got proper care. The result is that I preserved my hearing. I'd be completely deaf in one ear if I hadn't.

I write this because we have to take matters into our own hands with Wegs. If you want a Wegs doc to consult, you must demand it. Don't worry more about their feelings than about your health. Make sure your friends and family know to be demanding if you're unable to do it yourself.

[elephant]

Sangye, I don't understand why so many doctors are so reluctant to call the specialist! That is good advice Sangye.

[Jack]

I think it is because they don't understand what they are dealing with so don't see the need. They have probably managed to treat most other patients that came their way without loosing too many.