G'day all,
I have just stumbled upon this forum. I am from Sydney, Australia. and i have no idea how to start a new post or if i posted to the correct post.. very new with these types of forums
I don't suffer from Wegener's but my brother-in-law does and has been fighting this for almost 3 years now. This is the second time he is fighting this disease. The first time he had this disease i think he was 14 and when he had this disease then it affected all his joints and he had nose bleeds, he is now 36 and this time it has affected his sinuses and lungs. i have been talking to my sister (it is her hubby that is sick). the reason i am on here is because i am very curious to find out from other sufferers what side effects from all the drugs and everything that you have been told to take. my brother in law's (BIL) anchor was 6-8 for 3-4 months and now it has gone back up to 14. i'm not sure if we use the same terms as you guys but i am just curius. My BIL has had one of his lungs half collapsed and has been advised he has extreme emphysyma but has never smoked in his life (neither does my sister). he had to have a emergency trachiotomy done (thankfully that has since been removed) he is having dialatation done every month to help with his breathing, and his nose cavity disintegrated (i think that is the word).
I hope this is not the wrong thing to write. i am just trying to get my head around what is actually happening to him as it breaks my heart to see him like this. especially as he used to be a big runner and never smoked. at the moment i feel his overall mentality is stronger then his body, and it worries me as that can only last for so long. he has 3 young kids. 7, 5 and 3.(he got sick not long after his son was born.)
thanks for listening.
Smile, and let the world wonder why! - Minnie Mouse
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