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Thread: New Weggie, with paralyzed vocal cords

  1. #11
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    Dale
    That the schedule I was given, but when I talk to my rhumy in 3 weeks I will question it. they claim my last 4 treatments are still in my system and working.
    I'm ready for my vocal cords to return to normal.

  2. #12
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    Prednisone alone is not enough.
    Dale
    Dx Aug, 2009 Remission June 2010 until 8/1/2014

  3. #13
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    Ouch Russell,
    What a battle.
    Are you using high protein shakes in your feeding tube?
    We have to have a certain amount of protein to support our muscle and organs or our body will take from these.
    There is a protein powder I used for my mom when she was unable to eat enuf and almost needed a feeding tube.
    It is called Bariatric Fusion and you only need 4-6 oz of fluid to mix it and provides 27 grams of protein.
    It is used for those who had bariatric surgery.

  4. #14
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    Quote Originally Posted by Russell Bro View Post
    Debra,
    thank you, for the reinforcement and second opinion. I am so ready to eat by mouth. while I was at UCLA I was craving fruit smoothies I ordered a NutriBullet blender, so far it works great for my friends and family. some day I will get to enjoy it.
    I also bought a Nutribullet but heard bad reviews about the gasket coming off and the blades breaking so I took it back and got a Ninja but I end up using by old blender that I have had for years. I love smoothies too and have 1 every morning. Hope you get to enjoy them soon.
    Life isn't about how you survive the storm, but how to dance in the rain !

  5. #15
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    Quote Originally Posted by renidrag View Post
    Prednisone alone is not enough.
    Dale
    This really scares me when people say this,since I have been on only pred for about 4 years. I keep waiting for the bomb to drop.
    Life isn't about how you survive the storm, but how to dance in the rain !

  6. #16
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    Quote Originally Posted by Debra C View Post
    This really scares me when people say this,since I have been on only pred for about 4 years. I keep waiting for the bomb to drop.
    I think the key point here is that pred alone is not enough to induce remission. For some folks, it's probably adequate for maintenance...
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

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    Quote Originally Posted by Pete View Post
    I think the key point here is that pred alone is not enough to induce remission. For some folks, it's probably adequate for maintenance...
    I met a lady with weg's that was diagnosed back in 1962.
    All they had was pred back then and she is still alive and doing well.
    I was totally amazed.
    Perhaps, weg's wasn't as mutated back in those days?

  8. #18
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    That is what I meant Pete.
    Dale
    Dx Aug, 2009 Remission June 2010 until 8/1/2014

  9. #19
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    Hi Russell and welcome.

    Gosh WG has certainly loved you
    I'm glad you found this forum

    We bought a nutri bullet many years ago.......worst purchase we have ever made.
    As for trying to send it back to get a refund - forget that as a bad joke too.

    However, I hope it works well and the smoothies are just what the doctor ordered.
    Keep Smiling
    Michelle


    Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS

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