Originally Posted by
whatthewhat
Also the doc said she basically just keeps an eye "on the main organ systems, ANCA a and PR3 can't tell us anything, really."
Wow. Just, wow. Trust me, I made sure my rheumy was testing my PR3 every month during my labs. I've had my ANCA panel run probably 5 times, and only once did the cANCA show positive. However, every single time my PR3 has been abnormally high, which means my Wegs is still active and something inside my body isn't very happy. Even though I've fired my current rheumy in the last few weeks, she had even said that she realized the Cytoxan hadn't been working that great on my Wegs because my PR3 was always testing so high.
Now, tell me how a doctor would believe that not looking at the PR3 in a Wegs patient would be a smart thing to do? Without some of these more specific lab values, how will the doc ever SEE what is going on inside the body as far as Wegs flares are concerned? Sure, you always have symptoms, but lab tests help back these symptoms up and give them some idea where to look to find out which organ system is ticked off. The way you're describing this doctor, she wouldn't pay attention to your symptoms, either. NEXT!
Teri from Texas
Diagnosed w/WG March 2015
"Lord my God, I called to you for help, and you healed me." - Psalm 30:2
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