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  1. #11
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    Seashell,
    Welcome to the best support group you will find online 24/7. Wishing you all the best with your ENT appt. and maybe the rheumy might communicate with the ENT better for a resolve to your present condition.
    Jana


    Do not fear anything, just do it afraid!
    It does not matter how slowly you go, as long as you do not stop!


  2. #12
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    Welcome to the group Seashells! I'm sorry you're having trouble with your breathing again. I would be sure to check it out with your pulmonologist and/or ENT soon. As Anne said, methotrexate or prednisone may need to be adjusted or the stenosis could be an issue.

    I don't have tracheal stenosis but I have had trouble breathing and was diagnosed with asthma a few months after being diagnosed with GPA. My upper respiratory system and sinuses are mainly affected. I'm also taking methotrexate (25mg) as I don't have involvement in other organs.

  3. #13
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    Welcome Seashell
    Good luck with your ent
    I echo what people have already said , we know how we feel u may just need a slight med adjustment


    Sent from my iPad using Tapatalk

  4. #14
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    Went to roumy today. Upping meds and going for ct scan. Going to methotrexat injection on Saturday instead of pills. He's fairly certain I am in a flare. Has anyone else had elevated bp during a flare? My bp always runs normal. After tests and surgery probably going to go to rituxcin.
    Last edited by seashells; 02-19-2015 at 07:11 AM. Reason: Question

  5. #15
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    Quote Originally Posted by seashells View Post
    Went to roumy today. Upping meds and going for ct scan. Going to methotrexat injection on Saturday instead of pills. He's fairly certain I am in a flare. Has anyone else had elevated bp during a flare? My bp always runs normal. After tests and surgery probably going to go to rituxcin.
    My pulse went up about 50% and BP about 25% during my last increase in residual Weg symptoms while have sinus infection, bronchitis and flu.
    Knowledge is power! Wisdom is using it to make good decisions!

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