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Thread: Hello from PA....

  1. #11
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    His doctor is a women April Bingham...

  2. #12
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    Quote Originally Posted by renidrag View Post
    I would think the Rheumatologist would schedule blood work for you. Poconos would be closer to Philly yes? Dr. Peter Merkel is at UPenn I think, but the link Ann gave you would let you know.
    Dale
    Dr. Merkel is highly respected as a top WG doc. (Dale: Go Patriots! If they win, I'll be happy for you. If the Seahawks win it again, I'll be happy, too.)
    Anne, dx'ed April 2011

  3. #13
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    Is he pediatrics??

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    I dont care how far i have to drive..

  5. #15
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    Quote Originally Posted by Ladyleeza77 View Post
    I dont care how far i have to drive..
    I don't know if he is pediatrics. I think he's a rheumatologist with a lot of WG experience, though others could correct me about him being a rheumy. Sometimes docs in other branches of medicine can handle Wegs well. There aren't too many kids with WG, I don't think, but he may be able to handle it due to his experience, and could always refer you to someone better able to handle kids' cases, if someone like that exists.

    It's very good that you are willing to drive as far as it takes. That is a limiting factor for a lot of people.
    Anne, dx'ed April 2011

  6. #16
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    Ill look into that..thanks

  7. #17
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    Hey there, sorry I am just seeing this. We have a group of Weggie Moms on Facebook - I'm trying to remember if anyone is in Pennsylvania. I will private message you my FB info, and if you are on there we can hook you up with other East Coast moms. You are not alone. ((Hugs))

  8. #18
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    Hi Leeza! I'm a patient of Dr. Merkel's and I live in Philadelphia. My guess is 11 is a little young to see Dr. Merkel but that's just because CHOP (Children's Hospital of Philadelphia) is right across the street and it's one of the best childrens' hospitals in the country. I had my first symptoms of GPA when I was 16 so I was seeing doctors at CHOP at that point. Once I turned 18 they told me to go across the street to the Hospital of the University of Penn. At that point, I still hadn't been diagnosed (I wasn't diagnosed until I was 22 because my symptoms and blood work were inconclusive). When I was at CHOP I saw Dr. Ed Behrens, who wasn't a vasculitis specialist but he was an excellent physician. The nice thing about CHOP and Penn is that the physicians work very closely with each other and physicians at CHOP are faculty at the University of Penn so they are often working with the Penn doctors on research. I know Dr. Merkel and Dr. Behrens are very familiar with each other so if your son went to CHOP, his physician could still consult with Dr. Merkel. I believe there is another doctor at CHOP, Pamela Weiss, who is a pediatric vasculitis specialist. If you have any questions about CHOP/Penn, feel free to reach out to me. Good luck!
    Diagnosed October 2012

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